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    To tube, or not to tube (feeding tube pros and cons)

    Thanks Paula-Jane for your concern and reply. I guess I just need to make the appointment and ask the Dr. But I was hoping to know what to ask. I think this happened so quickly, you were right this is a game of bottom of the 9th and 2 strikes. I want to be prepared for the next swing. Thanks...
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    Another question for those with bulbar issues

    Rose Hi, I too, have not had any change in my taste or smell. Hope you get your answers soon. I know how hard it is to wait and not know. God bless, your in my prayers. sherry
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    To tube, or not to tube (feeding tube pros and cons)

    OK everyone heres one on the prevent side, my neuro said that I should consider the PEG before I started to have trouble aspriating. I choke multi times daily. So far no fuild has remained in my lungs, (I am able to eventually cough it out). He sees this as preventive, needless to say I am...
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    Have any Canadian PALS been prescribed Lithium?

    Hi, I would love to here more comments on those of you taking the lithium and rilutek too. My Neuro-muscular Dr. gave me a scrip today. Side effects? He wrote for 300mg. I am already on anxiety meds, but he said this is different. I am going to the thread new drugs to see what is in there. He...
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    Tim is in the Hospital

    Lori I have been off line for awhile and I am so sorry about Tim. I hope the morning finds him much better. I am glad to hear that your daughter is going with you. I hope you know that you and Tim are in my prayers every night. Hang in there Tim. You have agreat sister and I feel like I know...
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    Welcome Jeanie I am sorry for the reason you found this site but I am sure you will find it informative, and comforting. We are all at different stages. We all have different ways of coping. I think it is wonderful that you and your husband got time to travel. I hope that in 5 yrs. when my...
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    Als Registry Act/ALS Advocacy Update

    Letter from Senator Hi Lori, Just yesterday I recieved a letter from Senator Jeff Sessions, who you may know is from Alabama. If you will, I would like to share it with you. "Dear Ms. Key: Thank you for contacting me regarding S. 1353, the Amyotrophic Lateral Sclerosis (ALS) Act. I appreciate...
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    My Husband Jorge Lost His Battle To A.l.s.

    Dear Paty I just learned of your loss, may God grant you comfort. Isn't it strange how God opens a window when we think the door is closed. My first grandchild came when I lost my Father, now my Dx this past year and the second is on the way. Paty, You will be in my prayers and Jorge rest in...
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    Did any of you with ALS start with slurred speech?

    I had the slurred speech for 1 & 1/2 yrs before diagnosed in Mar 07. Now the choking and uncontroled emotional problems make me sometimes speech less. I also carry a card to show the police in case of traffic stop. It helps to have two members of the family in law enforcement locally. Have you...
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    Article from

    Thanks for the web site. I think it will help my family understand the "Doctor Talk". I always have a difficult time explaining the science of it. Have a healthy new year and again thanks for the info. sherry