Merry Christmas and Happy New Year everyone!
I haven’t posted in a while so I’ll give a quick recap to people who don’t know/remember me. I was diagnosed in July 2013 and have gone through the many stages of progression: walking with a cane, walker/rollator, manual wheelchair, power...
Just wanted to let people know that a couple of weeks ago I was able to see the documentary Gleason, about former New Orleans Saint Steve Gleason, who was diagnosed with ALS about 5 years ago. I would highly recommend this film for PALS and CALS as it does a good job showing the struggles of...
Still here. A little over a month ago, I got a Microsoft Surface tablet and Tobii eye gaze system (on lease). I am still not adept enough with that system to type entire sentences with my eyes, so I still have to get someone to help me with posting. I also got a head array installed on my power...
I feel busy even though I’m not really doing anything. With all the visits from PSWs, nurses, doctors, volunteers, occasional friends, etc., it seems that something is happening everyday although I’m not really accomplishing anything.