My husband has also in the last few weeks been diagnosed with bulbar onset PLS, symptoms started around the same time as yours, Feb 04. Dave started with slurred speech, but now has pretty bad (nasal) speech (we watch his lips a lot as well) and swallowing issues as well, and has the...
Thanks for all your suggestions, I never thought about pulp in OJ, but you are right, it could easily get stuck.
emjoi, you are totally right. I just phoned the speech pathologist to see when she was available to do the swallow test, told her about Dave's choking and she freaked out and is...
Thanks to all who have replied to this thread.
I appreciate all the advice I am getting, it is great to have somewhere to go to learn about this horrible disease.
The frustrating this is waiting for a difinitive diagnosis. My Dave wants one. We have 2 children (girls 9 and 11) and he wants...
Thank you all for your helpful suggestions.
I have just phoned the doctor to make an appointment as it is now time for Dave to have another swallow test as has been suggested. He already knows he is aspirating into his lungs as he can feel it. He had the test about 18 months ago and it...
I am looking for any advice on helping a choking MND person. My hubby (undiagnosed) has "a" motor neuron disorder. Bulbar onset.
Last night, he nearly died. He got some tiny morsel of food caught in his throat, (even after eating really slowly, chewing thoroughly and drinking water...
I am so sorry for what you are going through with your mum and your Dad's total denial. You are one tough lady! I think it is a great idea for you to get Power of Attorney for your mum. I've got Power of Attorney with Dave, not medical (I will have to look into that). But it sure...
Thanks for posting a reply. I am sorry about your diagnosis, I wish you strength. i was wondering if you could tell me how long after your bulbar symptoms did your lower motor involvement start?
Anyone out there with bulbar onset PLS. My hubby Dave (currently undiagnosed) has speech, swallowing, emotional lability, slow blink reflex, excssive yawning. It has been over 3 years now, still no lower motor involvement.
Thanks in advance.
I was wondering if anyone knew the difference between Pseudobulbar Palsy and Bulbar Palsy. I know they are both upper motor neurone disorders. I have done a lot of reading on the net, and as far as I can see they are pretty much the same thing.