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Thanks. I just found out the neuro I saw won't be back in the office until next week. The intern I spoke with called me about taking care of my muscle biopsy, post surgery side effects. They mentioned the test results they saw on my notes, but I don't think that person even realized how...

Who do you see? I actually made a trip to the Mayo Clinic in Minnesota because I haven't had much luck in Boston.

My post count is mostly because I used to spend some time in this part of the forum to help answer questions from people who just had twitching, but I haven't done that in years. I'm sorry to hear about your husband. My EMG only showed fasiculations, so I'm surprised that denervation and...

Nothing yet. I received a call last night from an intern who read me my test results. It was an intern from the office of the surgeon who performed the test, not the neurologist. I called the neuro I saw and am waiting to hear back.

Hello all, I started twitching almost 11 years ago, in November 2006. Since then, I've had problems with exercise intolerance and exertional weakness-- my muscles will shake or become weak after carrying items or shoveling snow, but I can still walk, talk, button my shirts and live my day to...

Thank you for the feedback-- and good to see you Beky; hope you are doing well these days. You're totally right about the "dodgy" neurological conditions. I remember a doctor telling me that I am lucky to not fit neatly into a clear diagnosis, and I try to keep that in mind. And after 7 years of...

7 years with symptoms but no diagnosis? Hello, I find myself back here because I want to know if anyone has heard of ALS-like symptoms that go on for a very long period of time. My first symptom was fasciculations back in the fall of 2006. Soon after, I had exercise intolerance, that would...

Exercise is exactly what causes my symptoms to present themselves. It's not even exercise anymore, just slightly out of the normal exertion. I can walk fine, but I had to hustle to catch an appointment the other day so I walked up the streets really quickly. After that I was unable to walk on my...

Docta. I am also a cancer survivor about the same age as you. I have been twitching for five and a half years, I've had the lump in my throat, I've had plenty of health anxiety, and I get terrible muscle fatigue. I do not have ALS. Listen, both of our bodies went through some s**t. Chemo is...

Hello everyone, I hope my friends here are doing well. I stopped coming here because I don't have an ALS diagnosis. But unfortunately, my problems continue and are still slowly getting worse. My muscle fatigue is pronounced, I have lost control of some of the muscles around my mouth, my muscles...