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I have a few question because this all so new and confusing to me. My hubby is on Riluzole and Relyvrio along with a lot of other meds for Als sysmtons from a few depression and meds to make him hungry . He had a lumbar puncture to see if it would show some answers. The C9ORF72 says negative...

Filled my hubbys at Aurora pharmacy in Wisconsin with no problem hopefully yours will also be filled soon

After many attempts at trying different things to try and help with the taste of Relyvrio the pharmacist that calls my husband said she heard dark chocolate helps. Yes it does the trick. Hubby takes a small piece after drinking it and that bitter salty taste is gone. Thought I would pass this on...

The doctors started my hubby on Riluzole 50 mg Oct 6th he is doing fine on it. Just trying to get that afternoon pill in him on a 2 hour empty stomach and then wait 1 hour. He likes to snack thru out the day. Saw his doctor last week and his care team. They were surprised how good he is and...

He has a little strange feeling with swallowing no choking just kinda tight like stress feeling but not real often. His eyes are fine and speech is good. I will find another doctor for a second opinion. Is there a special doctor that I should be looking for besides a Neurologist for Als that is...

I will definitely try that. Thanks for the help kind of not thinking real straight these days so much to think of

He doesn't get to see his Neurologist till Dec 22 it is a long 3 month just waiting . Bought a table that would slide by his chair thinking that would help but not really. Eating snacks seems to be easier were he is not holding a utensils. Yes you are right about the straw what a great help...

When my husband tries to eat his hands shake so bad he cant get his fork up to his mouth. He can eat part of a sandwich and then has to rest. Does anyone have any idea what he can do to help his hands from shaking ? It's not real bad all the time but when he tries to eat it eats its bad. He...

Kelly some of your husbands symptoms sounds so much like my husband. Its so hard to watch them slowly waste away and cant do anything to help but just be there for them. Take care reach out to m eif you wver want to just talk

I do have a question if anyone has had this problem. When my husband gets in the shower using warm water he can't lift his hands to his head. He can hardly hold his towel after. But before he gets in he can use them kinda good but after there no strength at all. But then after 5 minutes later...