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Barry, I do not have words. I can say only thank you. Thank you for everything.

I just read your note on trach...you are awesome. Harsh to folks who don't know how dark the woods are and are standing on the edge, but real.

I see Jane at our local society has composed a very useful booklet. This is from the ALS Assoc. state side - http://www.alsa.org/assets/pdfs/brochures/alsa_manual1.pdf ...so is it fair to say that it may be a federal issue where policy may not be timely or flexible to meet the needs of those...

Joy's husband assures me that they would have been covered through insurance and government funding. I will learn more. I do like the idea of a "binder" for everyone with PALS with all of the information needed with tabs so that CALS have a place to refer to as a resource.

Alberta ALS Society has this booklet - seems a lot relies on independent insurance agency coverage. There is another Gov. fund to apply for, but you have to somehow prove you are in the late stages of life with less than 24 months to live. nice. ugh. http://www.alsab.ca/_media/docs/manual.pdf#page86

in previous threads (yes, I did search threads on this) I saw a great idea about putting together a book. This was for CALS to ensure all of the paperwork was in place.

if you have information but do not want to comment on the forum, please email [email protected] appreciate any information or help you might have on this topic.

Damn, really? Frig, I wish the system was more clear cut. Okay...I will dig and dig and get back to you. I am in Canada which will be different from the US, but let me see what I can find on both fronts.

So I want to add links to Hope for Joy that will help people in Canada and the US to gain access to legitimate funds as we know the first issue after the reality of diagnosis sets in is, how the hell am I going to afford all of this. Also travel insurance...it seems to come up often. Do you have...

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