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no, he is not on the iv

We too are trying to get the oral Radicava. We just received denial from private insurance company saying "The use of this medication without normal respiratory function with a forced vital capacity (FVC) greater or equal to 80 percent does not establish medical necessity for this drug..." Is...

My husband itches, it's his head and face. And he can't scratch himself. Very challenging. We were wondering if it's a side effect of the Riluzole.

Thanks Nikki. I was in touch with Tom.

I went with the Liko HiBack that Jim recommends. It is working well for us. Long story short, I ended up with a size small sling that I am not using. JiminVA very kindly lent me his used size Large sling while I was fighting for them to send me the correct size. It was very helpful because we...

How ironic, as the disease progresses, his abilities regress, my skills advance, and we call that progress! Thank you Jim for guiding me in the right direction and lending me the sling. It is working well now for me during the day, and the nighttime caregivers are learning. I am still waiting...

One more problem, despite lowering him as far to the back of the toilet as possible, and despite the fact that the Liko high-back hygiene sling keeps him in an upright posture, he still ends up too far to the front of the toilet. There is a bidet seat which makes the hole smaller than an...

Thanks everyone. The problem with the back flap for us is my husband is not ready to give up underpants. And the fabric was too heavy for summer. I did find some pants called carezips that have zippers part way down the sides and another zipper across the crotch for using a urinal. They are a...

So here's an update, Lot's going on on many fronts. I am dealing with the company that sold me the wrong sized sling. JimInVA very kindly and generously gave/loaned me his size large. Which is a big big help. I may end up buying a new one, but it is so helpful that I can actually try it...

I wish we had thought of the toilevator. You can get a half-step if you have a caregiver to place it and remove it for you. like the Support Plus High Riser step on Amazon. we had many evolving uses for it