Search results

  1. V

    Multistep hypothesis

    I was diagnosed with ALS in 2022 age 63, with no family history. I am intrigued by the hypothesis proposed by my neurologist and his team in 2018 that it might be a multi-step process, with six triggers if there is not a genetic element, and fewer if an ALS gene is implicated...
  2. V

    Lighthouse II Trial

    The other positive thing I have noticed is less fatigue. My husband says I have more energy than he has now! Before the trial I was taking a long nap in the afternoon most days and going to bed by 9.30, and sitting down to prepare meals whenever possible. Now I don't need the nap, stand to...
  3. V

    AFO for drop foot

    I have a SAFO by Dorset Orthopaedics (UK). It's a very thin silicone 'sock'with stiffening, made to measure and bespoke for specific areas of weakness. It fits inside most shoes and completely transformed my walk from a lurching gait to a confident stride. Very expensive (£1,000+) but I would...
  4. V

    Lighthouse II Trial

    I started with foot drop and mt foot has been very limp and the toes could curl slightly under, but no more. My second toe kept curling under when I put shoes on. I have been doing a lot of physio to try and keep everything alive as best I can. After about 8 weeks the second toe gave an upward...
  5. V

    Lighthouse II Trial

    Hi everyone. I'm on the Lighthouse II trial in the UK and about 10 weeks in. A few side effects, but some small wiggles now possible in 3 toes that were previously paralysed. Of course it could be a combination of positive thinking and placebo effect, but side effects are probably not easily...
  6. V

    Article about HA-114 Probiotic

    Thank you. Camille at Lallemand just sent me the same list of Canadian products that contain HA-114 that was posted above. I really want the full strength HA-114 only product used in the scientific studies, and she hasn't send me any distributors for this so I'll see what the European sales...
  7. V

    Article about HA-114 Probiotic

    I have been in touch with Lallemand Europe sales office and also via their website. Nowhere to buy it in the UK, but I have asked for a list of European or Canadian suppliers so we might be able to get some sent. I really want to get their version as it is the one used in most of the scientific...
  8. V

    Article about HA-114 Probiotic

    Here is the full paper on the C elegans study. Science looks good.
  9. HA-114 ALS C elegans model .jpg

    HA-114 ALS C elegans model .jpg

  10. V

    Article about HA-114 Probiotic

    The company that supplies this are called Lallemand Health Solutions . I have written to them to see how to get the precise one used in this and a number of other studies. They don't seem to have a purchase option on the website. I am based in the UK so I hope I can get hold of some. I will...
Top