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I was diagnosed with ALS in 2022 age 63, with no family history. I am intrigued by the hypothesis proposed by my neurologist and his team in 2018 that it might be a multi-step process, with six triggers if there is not a genetic element, and fewer if an ALS gene is implicated...

The other positive thing I have noticed is less fatigue. My husband says I have more energy than he has now! Before the trial I was taking a long nap in the afternoon most days and going to bed by 9.30, and sitting down to prepare meals whenever possible. Now I don't need the nap, stand to...

I have a SAFO by Dorset Orthopaedics (UK). It's a very thin silicone 'sock'with stiffening, made to measure and bespoke for specific areas of weakness. It fits inside most shoes and completely transformed my walk from a lurching gait to a confident stride. Very expensive (£1,000+) but I would...

I started with foot drop and mt foot has been very limp and the toes could curl slightly under, but no more. My second toe kept curling under when I put shoes on. I have been doing a lot of physio to try and keep everything alive as best I can. After about 8 weeks the second toe gave an upward...

Hi everyone. I'm on the Lighthouse II trial in the UK and about 10 weeks in. A few side effects, but some small wiggles now possible in 3 toes that were previously paralysed. Of course it could be a combination of positive thinking and placebo effect, but side effects are probably not easily...

Thank you. Camille at Lallemand just sent me the same list of Canadian products that contain HA-114 that was posted above. I really want the full strength HA-114 only product used in the scientific studies, and she hasn't send me any distributors for this so I'll see what the European sales...

I have been in touch with Lallemand Europe sales office and also via their website. Nowhere to buy it in the UK, but I have asked for a list of European or Canadian suppliers so we might be able to get some sent. I really want to get their version as it is the one used in most of the scientific...

Here is the full paper on the C elegans study. Science looks good.

The company that supplies this are called Lallemand Health Solutions . I have written to them to see how to get the precise one used in this and a number of other studies. They don't seem to have a purchase option on the website. I am based in the UK so I hope I can get hold of some. I will...