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Sharon, Thank you so much for the ambu bag tip. We have one and I will be certain all family caregivers are up to speed on it. So much we all need to be aware of. As an update to anyone looking for info and reflection on the tracheostomy decision here is an update on PALS... Note my comments...

Thank you very much for your thoughts. All the best to you all.

Looking for advice, experiences, tips and tricks from PALS and CALS. We know this is a lot so we really appreciate any/all info you're willing to share. We hope the answers to this post will also help others who might be on the same path. I've searched the previous posts on the forum and...

Thank you both for your thoughts. Feedback from personal experience is so very helpful and gives us an idea of what to expect... or maybe expect.

Darn continuum : ( Thank you for suggestions. I'll check with Dad on quality of hoses/masks/humidity and filter. Would you suggest pineapple and papaya juice through PEG since she is taking nothing orally? And would you normally consider juice as an equal swap to the daily water recommended by...

Recently joined this group, first post and question about oral and throat dryness and excess mucus. Apologies for the length! I’m hoping that if other new cases are out there searching this can be an easy place to find a bundle of ideas! Mom diagnosed bulbar onset ALS 11/2020, mild symptom...