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no, i didn't bother - they seemed to just want to get rid of me, and were pretty insistent that my EMG results (or non-results) were conclusive. besides, i only saw tawil for about 3 minutes. after my EMG, one of the fellows came to talk to me (not tawil), and i just wanted to get out of there...

Well, I am a bit more impressed with Strong than I was with Upstate (but not much). They were, I must say, very thorough (but not very personable). I went in this morning, and got an exam from one of the fellows, followed by a quick exam by the attending. Basically, he said that it doesn't...

I hope you are right about tomorrow - but based on my experience with doctors so far, I can only count myself as "cautiously" optimisitc... I've been feeling about the same. My left hand seems to be stiff now, which stinks because it's the only one that works. My joints are now popping...

I tried sending this to your private mailbox Leslie (my first attempt at doing this), but it didn't work...something about it being full or something...but I haven't posted in a while, so I thought I might as well pop in and say "hi" to everyone... My appointment at Strong is Wednesday (thanks...

well, just got back from the neuro and took your advice - i'm waiting for strong memorial to contact me now. thanks for the tip......hopefully i'll receive better treatment there. it's nice to know, though, that i wasn't the only one that was treated like crap at upstate...

yeah, i'm not giving up. i called the first neuro i saw, and am going to try to get him to send me to strong (apparently my crappy insurance requires the referral). thanks again to everyone for the encouragement.

Thanks for the info. I didn't see anyone with belly fat - apparently I saw the ALS clinic director. Strangely enough, my brother saw some survey in a CNY magazine saying that this doctor is one of the most highly regarded in the area. Uh-huh. BTW, what were you diagnosed with?

OK, I'm a little p*ssed. Had my follow-up EMG with the quack at the ALS clinic, and he spent all of 10 minutes (I am serious - that's it) testing me, then declares that I am fine and can just go live my life. I am perfectly willing to do this, but wtf? He couldn't have been more dismissive of...

The twitching is almost enough to drive you to drink, isn't it? Actually, it has driven me to drink on several occasions... Jeff, we seem to have many of the same symptoms, except I'm going on 3 months of twitching. Started in the calves, moved to the feet, now the tongue and back. I have...

Ha! Now that's a good one. I'll be laughing at that all day....