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  1. C

    Getting Peg tube, tips and tricks needed.

    Thank you all. The doctors are concerned about respiratory issues because of all the muscle weakness especially with the diaphragm. We're having it done locally at winter Haven hospital. They are doing it radiology guided. I am an over planner , I like to be prepared for everything. Perfect...
  2. C

    Getting Peg tube, tips and tricks needed.

    Crabby is getting a peg tube Wednesday. What should I expect for his recovery period? Does anyone have any recipe's or websites they use? His doctors are very upset he waited this long to get it, and are "concerned" about performing the procedure . Any tips or tricks for using it would be very...
  3. C

    New around here and have some questions.

    Thank you so much everyone. I apologize for not being here for a while but I was dizzy and nauseas and had left sided facial and head numbness. Turns out I had a mini stroke(tia). I'm much better and was told I should test till the end of this week. I'm only doing the minimum besides Pat's care...
  4. C

    New around here and have some questions.

    That's very interesting because he was diagnosed with ALS before he got the machine. He did the pulmonary function and overnight testing after diagnosis. His pulmonary doc is not great in my opinion because he was supposed to write for a suction machine then after the four months it took to get...
  5. C

    New around here and have some questions.

    I really appreciate everyone and their input. You all are very welcoming. Thank you.
  6. C

    New around here and have some questions.

    Sorry, I logged out and when I finally got a minute to myself I logged back in and couldn't find this thread. I took a picture of pat's machine but don't know how to get it on here. His wheelchair is a permobile c3. It's been crazy getting our son ready for school to start this Monday. The...
  7. C

    New around here and have some questions.

    I contacted the mda to ask about a roho cushion. I'm going to look at the two websites hopefully this weekend. Pat had a rough day yesterday. So I was very busy.I'm not working (there isn't enough hours in the day) so money is budgeted to the penny. I can't afford the move without selling the...
  8. C

    New around here and have some questions.

    He can't sit long because well he has lost the muscle and fat on his rear end and legs so he says it feels like his bones are on the seat. He gets the pressure wounds so easy when he's sitting. I move him and adjust him alot but it doesn't seem to help much comfort wise. I pack pillows...
  9. C

    New around here and have some questions.

    Atsugi: he was never in the military, he was a firefighter and we were both EMTs in NJ. We tried the movies and he couldn't sit that long.I've been trying to pack everything myself and it's overwhelming I'm going to check reviews for movers that is a great tip.lgelb:we're going to be going to...
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