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    ooppppssss-----forgot to ask about the coconut oil, also. how much & how do you take it...

    ooppppssss-----forgot to ask about the coconut oil, also. how much & how do you take it? thanks so much. Cyndi haven't seen your posts for a while ------hope all is well
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    saw on one of your posts you use Miralax or rec. it, as it doesn't cause the cramping,as most...

    saw on one of your posts you use Miralax or rec. it, as it doesn't cause the cramping,as most others do. was wondering, as the directions say 1 wk use only, if you abide by that, or take more often. used it yest. & it made everything wonderful --------if that's even possible. but have such...
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    CVID tests and treatments may help ALS

    took IVIG tratments for possible multifocal motor neuron dis. which would respond favorably to these treatments. no improvement. may as well been injecting water (which it looks like). the atrophy, fasciculations and functional deterioration chugged along, relentlessly. subsequent diagnosis...
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    To those with ALS, what do you think was the cause?

    i feel mine is of hereditay derivation . my grndmother had it. but why did it skip a whole generation. my sister didn't get it. will my children ? or will it skip a gen. should go get the SOD blood work done for hereditary proof i guess.
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    do you know exactly where that ALS loan closet is located? Port Orange is about 5mi south of...

    do you know exactly where that ALS loan closet is located? Port Orange is about 5mi south of Daytona Beach. Tampa is too far for me to go to see a neuro. Even Orlando's overa hr from me. since there's really no good meds or a cure i figure the neuros for diagnoses then thats it. what else...
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    What's next in the progression?

    not me ----have told my completely useless neuro about it & got no response. am done with him. i believe the pain is from atrophied muscles all around the hip jts & when laying on side, pressure onto nerves . wanted to ask you,since youre closeby, is there aloan closet anywhere in...
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    What's next in the progression?

    hey deb----i have read sev of abbaschild's postings. i believe she's passed on --has she, do you know? every morning when i wake, i'm firstly disappointed i'm still here, then i assess what ii've lost, as this dis. is moving at a pretty good clip. youre exactly right --- you deal with ea dy &...
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    What's next in the progression?

    well Deb, i appreciate greatly your concern for me and suggestions. the ironic thing is ..........i AM an OT., for 40 yrs +. my last job was with 17 OTs & PTs whogive me equip and all the assistive devices available to try out & use if helpful. i have adapted my bath , kitchen &bedroom. my...
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    What's next in the progression?

    my post was sent off to moder.,except the listed moderators: al & rcharlton have passed away ? sooooo, who's moderating my post? How long will it take to return?
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    What's next in the progression?

    I'm n Effexor xr and haven't slept well for 2-3 yrs & finally on Klonepin, a miracle med that allows sleep. now have intense hip pain, only at nite when re-positioning. have tried pillows,cushions,fleece padding, heating pads, special teas, with Ultram (quite useless) & next considering...
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