Search results

  1. T

    tmasters Passed Away

    Hi, Tom's children here. Tom died peacefully in his sleep at 10:00 this evening, May 24, 2016, after a bout with pneumonia - and, of course, a long struggle with ALS. We'll miss him.
  2. T

    Things are stable with me except arms getting weaker can't pick my nose :) We never got a...

    Things are stable with me except arms getting weaker can't pick my nose :) We never got a winter in SoCal.
  3. T

    Bipap and eye glasses

    Sure. Respironics Swift FX.
  4. T

    Dps

    I've had DPS since April 2012. No need to worry about the plug or wires getting wet. -Tom
  5. T

    Just got back from Maui. Latest battles are breathing and using my hands to eat but still...

    Just got back from Maui. Latest battles are breathing and using my hands to eat but still living thanks to help from others.
  6. T

    Question for PALs in wheelchairs (and caregivers!)

    Your mom will NEED a powerchair that allows her to tilt and recline and adjust her leg position with the press of a button. It is very important that she reposition herself often to avoid pain, stiffness, and pressure sores. I am transferred 5 times a day bed/chair/toilet/shower/chair/bed...
  7. T

    For some reason I can no longer send/receive private messages or save my avatar pic. Who knows...

    For some reason I can no longer send/receive private messages or save my avatar pic. Who knows...
  8. T

    You posted: "We moved our bedroom downstairs and had a wheelchair lift installed to go down the...

    You posted: "We moved our bedroom downstairs and had a wheelchair lift installed to go down the 4 steps to the bedroom." Wow! I did exactly the same thing in 2009. Good luck to you and God bless. -Tom
  9. T

    Feeding tube and DPS

    I posted this privately but now realize this may be helpful to somebody else: A year and a half later, I have no regrets. Yet I don't "swear by it" or even really know if it helps. Many others seem to credit its use for a longer life, etc. I use it from bedtime to morning only now. I found it...
  10. T

    Hi Chris, A year and a half later, I have no regrets. Yet I don't "swear by it" or even really...

    Hi Chris, A year and a half later, I have no regrets. Yet I don't "swear by it" or even really know if it helps. Many others seem to credit its use for a longer life, etc. I use it from bedtime to morning only now. I found it uncomfortable, or just annoying, to pace during the day. At night...
Top