Search results

  • Users: DonS
  • Order by date
  1. D

    Questions about Bulbar ALS

    Hi guys, Thanks for your responses. I'm taking your advice and waiting to have the modified barium swallow performed on the 4/26. One of the thoughts I had that convinced me to go this route (besides you both being right that this test produces a lot of valuable info) is that it would...
  2. D

    Questions about Bulbar ALS

    Hi Affected, Thanks for responding. You're right, my posts are rather long. It's always been the way my mind works with long rambling trains of thought. I have friends and family but I've been keeping all of this from them. I guess I just need to let this out somewhere. Maybe it's selfish that...
  3. D

    Questions about Bulbar ALS

    Okay, cool I'm not sure why but previously I was having difficulties getting my messages to post (which was quite frustrating when I put considerable time in to one of them). Sooo... I was able to secure an appointment for the modified barium swallow study on 4/26, which is disappointing to say...
  4. D

    Questions about Bulbar ALS

    testing to see if my messages will post through
  5. D

    Masitinib phase 3 !

    Ehh, looks like a typical pharma company that likes to talk up it's product line. Appears as if they've been shotgunning this compound at a whole bunch of diseases and have so far been rejected by regulatory agencies repeatedly... but hey, ya never know... AB Science (ABSCF) Claims ALS Drug...
  6. D

    Masitinib phase 3 !

    I'm going to start searching for any data I can find... but anyone care to guess how big of a deal is this?
  7. D

    Questions about Bulbar ALS

    Thanks for your response Mike. It means a lot to me. I haven't received the modified barium swallow yet. They are suppose to call me today to confirm the appointment time. Apparently this is not a common test and I've been getting a bit of a run around with setting it up. I did previously have...
  8. D

    Questions about Bulbar ALS

    Thank you taking the time to reply. I have been to both an ENT and a gastro. I haven't had sinus issues for while (so haven't seen the ENT lately) but I'll be going him on Thursday to ask for a neck CT. My throat has been evaluated multiple times and they found nothing. And I am actively...
  9. D

    Questions about Bulbar ALS

    And this is the logic I've been trying to use to keep myself calm and wait for answers: Odds of getting ALS: 1/50,000 Percentage of ALS diagnosed under 38: .03% Percentage of ALS that is Bulbar: 25% 50,000/.03/.25= 6,666,666.75 So the odds of someone my age being diagnoses with bulbar ALS is...
  10. D

    Questions about Bulbar ALS

    Sorry, I forgot to mention my specifics: I'm about to turn 37 years old. I use to do amphetamines, smoke etc but have quite all of those bad things since 2012. I've been diagnosed with a mild hiatal hernai and minor reflux. And I've had left leg sciatica for years. I think that about covers it...
Top