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  1. liz


    Hi Micheline - Glad you're back. I think you need to get the PEG before your breathing gets too bad for you to have the procedure. Where's that social worker that said you'd be OK on your own? I can't believe anyone thought 2 days of help per week would be enough. Liz
  2. liz

    Hit a wall!

    I had to go to the hospital earlier this week. My biggest fear, which came true, was that I would not be able to communicate my needs to the hospital staff. While I was there, I noticed that the family of the woman in the bed next to me had posted a sign over the head of her bed with special...
  3. liz


    Micheline - You sound so depressed. Has that been addressed with your care team? I understand the issues in your family are making everything worse. No wonder it's so hard to make a decision. I know taking an antidepressant won't fix your family but relocating won't cure depression. JMHO...
  4. liz

    Problems with catheter

    My experience with catheters was as bad as your wife's. Nothing helped and I finally gave up because it made me so miserable.
  5. liz

    mobility wheel van

    Here's a link to the VA's web site with info about the Automobile Assistance benefit. We found a reasonably priced van on craigslist.
  6. liz

    Cather's and all the problems and maybe solutions

    I couldn't take it anymore so I called the VNA. The nurse who came guessed the first cath wasn't placed in far enough. She replaced it. Problem solved. Whew!
  7. liz

    Cather's and all the problems and maybe solutions

    I had a Foley placed 5 days ago. I can't find a way to sit comfortably. Tips anybody?
  8. liz

    Remember We are people facing ALS

    Pat - I'll catch up with you via PM, hang tough.
  9. liz

    The Twitching or the Egg?

    MangiPNG - You came here after you had a complete neurological exam and were told you didn't have ALS. You were treated compassionately and respectfully by every member who responded to your posts. I've never heard of anyone being blackballed on this forum but I'm not sure how much more...
  10. liz

    Longevity after ALS diagnosed .... age dependant ?

    Nope, it's not age dependent. It's random.