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  1. M

    Genetic Testing

    I already have a child, and this decision has nothing to do with embryo selection. I’ve been in deep discussions with my husband about this already. I have been in contact with all my supports and I am still weighing out my options, but came to you all, who have more knowledge with the disease...
  2. M

    Genetic Testing

    Hi there, My family has been burdened with C9 - we’ve lost 6 amazing people in 2 generations, so far, including my mom, Godfather, and Gramma. I’ve struggled with anxiety over this disease for over a decade now. The anxiety presents itself in the form of symptoms and I trick myself into...
  3. M

    Question about Bulbar

    It was full on slurring. I thought she was drunk or something, though she never slurred when drinking in the past. It would frustrate her completely. Read the sticky note post in the forum. It helps me greatly when my mind dives into anxiety over my 1 in 2 odds of inheriting FALS. I’ll tell...
  4. M

    Question about Bulbar

    Both my mom and uncle had bulbar onset. And with both of them, their speech was the first to be affected. Your symptoms don’t sound like ALS.
  5. M

    Thank you

    Thank you Mike, Nikki, and Lenore. Nikki, I know nothing about gene blocking. I'll have to do some research. Thanks for the info - I'll look into it! :) And again, thank you. This is such a helpful place for me. Xo
  6. M

    Thank you

    I've only ever written here in a state of panic. This time it's different. This forum, and the pinned post 'Do I have ALS?', have made me realize the anxiety that I have over inheriting FALS. I found the post last time i was wrapped up in fear, and it made me realize that anxiety was the...
  7. M

    I'm petrified

    I appreciate your feedback, Mike. It brings me great comfort.
  8. M

    I'm petrified

    That's completely fair. I don't recall inputting that info when I signed up a year ago, but I will update it. I didn't realize it said what it did. lol very strange. Thanks for your advice on not attending a walk in or ER. I will just have to wait until my appointment in late October. Seems...
  9. M

    I'm petrified

    Thanks for your reply, Nikki. Yes, C9orf72. Sorry, I'm in a bit of a panicked state right now, so I'm not thinking properly. I did say hands, but it's my left hand that struggles and my right hand works extra hard, which likely makes it tire as well. I am two hours out from the ALS clinic...
  10. M

    I'm petrified

    Hi everyone, I'm so scared that I have FALS. As far as family history with the disease goes, I've lost 5 family members, including my mom (49y/o), my Gramma (69 y/o), and uncle (56 y/o). We have chromosome 9. I've been having symptoms about a week now; I'm a 33 y/o female. In the past, I have...
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