Search results

  • Users: gilly
  • Order by date
  1. G

    anxiety and als

    peg... sounds like it could be anxiety. but sometimes als can cause little jerks in your muscles. i have heard of that before. however, if you feel you were having panic or anxiety, it's certainly something you can train yourself to cope with. it's all in your head so that's where you need...
  2. G

    anxiety and als

    my aunt has been experiencing a lot of panic attacks lately. i happen to be quite familiar with an anxiety attack and how it can completely crush your ability to reason with yourself and feel stable. it can cause you to lose your breath, make your head spin, feel your heart pounding etc. add...
  3. G

    advanced stages of ALS

    thank you ugh... i really love this forum. you're all so amazing. thank you so very much for the encouragement. i will be sure to take it with me and pass it on to my aunt - who needs it the most. i wish i could visit all of you since everyone seems to agree that visiting is the best...
  4. G

    advanced stages of ALS

    hi everyone... i sort of disappeared from the forum for a while. was trying to keep my mind on other things. but the time has come where my aunt needs a feeding tube and a ventilator. i just can't suppress the overwhelming sorrow i feel for her. she can't speak and now can't eat or drink...
  5. G

    suction apparatus advice?

    thank you thanks al! i sent you a message and asked again but just read your response - so thank you for that. and thank you jeanne for your info. i will look into everything. god bless...
  6. G

    suction apparatus advice?

    hi everyone. my aunt has been dealing with ALS for almost 2 years now. we've tried to convince her to get the feeding tube but she's still in denial and doesn't believe she has this disease or needs help with her feeding. the truth is she's always choking on food and can't form any words...
  7. G

    My Mom Just Dx With Als At Age 59

    hi hi there. i am so sorry to hear about your mom's diagnosis. my aunt was diagnosed about a year and a half ago. i haven't been on this site for a while because i needed a break from all of the information. that happens after the diagnosis is fresh. you'll find yourself searching and...
  8. G

    just checking in!

    hi everyone. it's been quite a while since i checked in and i just wanted to say hello. my aunt is doing well considering it's been over a year since her diagnosis. her speech is almost fully impaired and her hands are starting to curl up a bit. ever heard or that? is that common? she...
  9. G

    Sorry I left...

    hi there jen. i am totally unqualified to offer advice but i want you to know that everyone on this forum is so wonderful and supportive. i hate to hear that you feel abandoned. please keep yourself involved in the chats that go on here and let us know when you need that extra bit of...
  10. G

    acne from ALS?

    thank you all for responding so quickly. i agree that it could be from the supplements. i am so proud of all the work she's doing to stay strong and fight the good fight. of course she's realistic when necessary but for the most part... she'll try anything. cindy, my aunt is 47 years old...
Top