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  1. M

    Advice to help with sleepless nights

    HI Anne, I have thought about you often, wondering how you were. I'm so sorry to hear your SIL has ALS - I didn't remember you mentioning that before. My mom passed away from ALS one year ago Oct 23rd, our moms had somewhat the same progression. I am now volunteering for our local ALS...
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    jdale949 Sorry for your loss

    jdale, Your mom sounds like a wonderful person. My deepest sympathy to you and your family.
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    Thank you

    Edith, I am so sorry to hear of the passing of your mother. We are never ready to lose a loved one, but I try and be thankful that my mother is no longer suffering. Every post I read of someone losing a loved one, I just want to scream WHY?!
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    My sweet mother

    Such a beautiful poem - words never truer said. I lost my mom October 23rd, and not a day passes I don't think of her, and just wish I could talk to her. It is so tragic to lose a loved one to this horrible disease.
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    My Husband Jorge Lost His Battle To A.l.s.

    Paty, My deepest sympathy on the loss of your husband. You were a wonderful caregiver and wife. My prayers and thoughts are sent your way!
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    My dad is gone

    Lisa, I am so sorry to hear of your father's passing. My thoughts and prayers will be with you. My mother passed away October 23rd, after a one year diagnosed, but symptoms at least one and a half year prior to diagnosed. I tell myself everyday that mom is in a better place, but I still miss...
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    Feeding Tube Advice

    Ilovemymom, I think Caroliney gave good advice - make sure site is clean, and flushes are important. My mother had a feeding tube placed in April, and had only slight discomfort for the first day or two. She looked so much more hydrated after the procedure. Can your mom eat soft foods, or...
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    Crooked Creek is gone

    Al, Please let Crooked Creek's family that I am so sorry to hear of his loss and my prayers will be with them. Such a young person, with children still at home, has to be so hard on his family; and yet he showed so much concern for them.
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    I love to hear about end of life events like those mentioned above. I know we have to have to trust and have faith, but somehow these events reassure me about the afterlife. Death is the great unknown, and seems scary, but knowing that someone that my mother loves is there to help her with the...
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    a brave wonderful PAL has lost his battle

    I am so sorry to hear of the loss of your husband - it must be extra hard around the holidays. My mother passed Oct. 23rd, and like you, did not feel prepared. I don't believe we are ever prepared, no matter how much time our loved one has this horrible ALS. My prayers will be with you, he...