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  1. KatieNBoyd

    Books that helped me

    Hello my friends, I am listing the books that we have. I want them to go to anyone that feels they would like them. No cost I will just mail them to you. Each of these have helped me through all of this. I hope that others might be able to use them too. The Comfort of Home, A complete guide...
  2. KatieNBoyd

    Getting through the days

    I was looking back over the posts I had made a year ago. It seems like yesterday but at the same time it feels like forever. Next month will be one year. I am doing better today than I was say about a month ago. Weird things with family and friends continue to happen in particular with Jon’s...
  3. KatieNBoyd

    Knowing that I missed it and living with it

    Here I am going on 9 months since my PALS death I have gone to grief counseling, I see a therapist and I write in my journal. There is the part of me that knows that I did every thing I was suppose to do. But there is the part of me that repeats over and over the night Jon died. I got him...
  4. KatieNBoyd

    Just saying hi

    I wanted to check in with you all to say hello. Today is 5 months since Jon passed away. Hailey turns 16 on Sunday and told me she feels an empty space in her but knows that dad is here in her heart and memories. We found and printed lots of pictures of the two of them for her, (adoption day...
  5. KatieNBoyd

    Anyone else finding stuff

    So, has anyone else had the "pleasure" (sarcasm) of finding things, notes, letter, photos, emails, and the likes while clearing out stuff. No I am not talking about High School stuff I am talking about things during your marriage/togetherness. Yep, such fun, (sarcasm again!) I feel like i...
  6. KatieNBoyd

    A CALS wish to PALS

    Hello, I do not want to impose myself on the group but I have a tiny request that I wanted to put out there. My PALS, my husband was diagnosed in Oct 2015 (there were signs that began Dec of 2014) he left me Friday Dec 9, 2016. He had ALS + FTD so most of the things that have happened in the...
  7. KatieNBoyd

    A CALS wish to PALS

    Hello, I do not want to impose myself on the group but I have a tiny request that I wanted to put out there. My PALS, my husband was diagnosed in Oct 2015 (there were signs that began Dec of 2014) he left me Friday Dec 9, 2016. He had ALS + FTD so most of the things that have happened in the...
  8. KatieNBoyd

    Jon is at peace

    Just sat down today for the first time. My sweetheart, soulmate Jon and I were the best friends. This morning around 6am he needed me to adjust his pillows and give him a tiny bit of water. Then we went back to sleep. I woke up at about 7 and he had passed away. I miss him but I am so relieved...
  9. KatieNBoyd

    How to prepare

    I have re read many of the posts on what to do when our PALS pass on. I have all the paper work done, we have Hospice in place and the social worker has helped a lot. Or family has talked about his wishes and dying at home, accounts and titles transferred into my name and such I have the...
  10. KatieNBoyd

    Respite care

    Good morning, I would like to know if any of you have used respite care for your PALS with FTD? I know that with our Hospice care that they allow a few days respite at our little hospital. I also know that our hospital and its staff have never cared for an ALS patient let alone one with FTD...
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