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  1. freddiesnetty

    I heard him play again!

    Well, I am so saddened to say that my dearest friend has left the building. He wanted me to put it that way. Freddie passed away on April 2, 2009 at around 7 am. I went to wake him and he just never woke up. I will tell you more later, I will miss him so, I do know that it was so windy...
  2. freddiesnetty

    Thanks for all the support!

    Thanks so much for all of the support, I know that I came in and then went out again. I can not seem to get Freddie over this pneumonia crap. It seem to come around about every 2 to 3 months. I wonder if it is because he got that damn pneumonia shot..? But anywho things are getting a little...
  3. freddiesnetty

    ok........I have been away.....and I need yalls help

    Well I have been gone for awhile, I am so damned depressed I don't know what to do. I know that it has been hard around here awhile back, everyone passing and even though you don't know these people that we talk to or about, It sure seems like it....... I think that in my pea brain mind, I...
  4. freddiesnetty

    Way to go Mike aka Quadbliss!

    I am so excited, it is strange though because I have been wondering about Mike. I got my MDA/ALS magazine this month and low and behold guess who is in the middle of the magazine...........Well it is Mike, I was so excited to see this, I have been wondering about him and how he was doing. He has...
  5. freddiesnetty

    WE Survived IKE

    Well I have not gotten online in such awhile I don't know if I can even type....I am sooo tired, We did get power on yesterday after 8 days without. Freddie did ride the hurricane out in the hospital, what a nightmare that was.....The power and the generator went down and it was ugly, raised all...
  6. freddiesnetty

    Freddie In Hospital!

    I can not write too much. I have got to get back to the hospital. Freddie has a touch of pneumonia:( And then today they told me that he has psuedomia sp? I know that that is not a good thing. I have beat myself up for a few days wondering if I caused this..They seem to think that it was...
  7. freddiesnetty

    Robinol? Secretions w/Trach

    Hi All, I know that this is a question that I should know the answer to but I am just double checking with my experts:-D Freddie seems to be having alot of oral secretions, him being trached and the constant swallowing, is causing me to suction him orally and through his trach. He is on robinol...
  8. freddiesnetty

    I am back!

    I am so sorry that I haven't been on in awhile........I have been sooooooo busy, this is a little different. Freddie is doing well, he is sooo depressed, his wheelchair is not ready so he has been on his back for about 37 days now and he is in so much pain...I myself am running around in...
  9. freddiesnetty

    Abc 13

    Hi I had wanted to post this yesterday, but the day wiped us out....As I have spoken so many times that my husband is a musician, a signed one (to Sony) and this happened. Well yesterday abc news came to the house and did a lengthy interview with our family. Stu Freddie and I gave you a plug as...
  10. freddiesnetty

    Freddie and USA Today

    Hi I just wanted everyone to check out this link on my hubby: We were approached by abc and cbs. I know that some of us do not get the media attention but I am in the fight for all of us.... Stu this is the media attention I was talking about, lets get this together and roll with it, Lori, I am...
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