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  1. glupavomomiche

    PALS Beauty Parlor

    Alrighty, ladies (and gents, if you're not bald and enjoy a good beauty regimen)... This affliction of ours is really tough on one's vanity. So I thought maybe we could share some tricks and tips and buoy each other up when we go through changes. I'm not much for makeup, but I know most ladies...
  2. glupavomomiche

    Cough Assist and/or Thumper Vest?

    I saw a pulmonologist last month and he started me on a lot of new meds to try to keep the asthma better under control so we'll have an easier time identifying breathing problems related to ALS. Once I started on those, the crud in my lungs has turned loose like crazy! I let my neuro know and...
  3. glupavomomiche

    We want our like button back!

    ** banging fork and spoon on table rhythmically while chanting ** WE WANT OUR LIKE BUTTON BACK, WE WANT OUR LIKE BUTTON BACK... Hear ye, hear ye, o' PALS and CALS and friends of mine, Are you too looking for a way to show others our appreciation of their... helpful hints caring comments...
  4. glupavomomiche

    Scared I have BFS

    I'm, like, a 33 year old female, and I'm not in good health. I have a lot of weakness all over, I have foot drop, I can't walk anymore without a brace and a cane or walker, and I have trouble swallowing and eating. I went to LOTS of neuros, and they were like, OMG, you have ALS, you're gonna...
  5. glupavomomiche

    ALS Awareness Painting

    I've been dabbling in my paints now that I'm retired. Since it's ALS Awareness month, I felt inspired to create a painting in honor of our month. Not my best painting ever, but considering my rapidly diminishing motor skills, it ain't too shabby. The sunflowers, corn flowers, forget-me-nots...
  6. glupavomomiche

    A week of changes, courtesy of Mr. Gehrig

    So, I guess I should refresh your memory of my current situation: I'm a music teacher at a primary school and have been pushing to make it through to the end of the year. Unfortunately, progression has just been so much faster than I (or anyone) had really expected. Things really came to a...
  7. glupavomomiche

    Wrong bipap?

    Maybe it's a dumb question... maybe not. I'm hoping those of you that are more experienced with this bipap business can answer this question. My Rx for the bipap specifically says "Equipment being ordered: Bi-level intermittent positive air pressure (BiPAP ST with AVAPS) with heated humidifier...
  8. glupavomomiche

    What ever happened to...

    don't kick a man (or woman) when he (or she) is down? I've been placed on administrative leave with pay. I'm being sued by a hospital. My ex is trying to move to my hometown. I have a disease with no cure. Every time I think "It can't possibly get any worse!" ... it DOES. Everyone says...
  9. glupavomomiche

    TV Shows with ALS?

    I'm not much of a TV watcher, but there are a few shows that I have to catch up on every now and then. When my ex was here for the holidays, we were saying it would be great for awareness if a prominent TV show character were to get ALS. I know there was some talk on the FB Hugh Laurie for ALS...
  10. glupavomomiche

    Als/mnd/... Nmd?

    So I missed a couple of days of work this week and went back on Friday since it was a Teacher Workday and no way was I going to take off on such an easy day. I had told a few coworkers and the "higher ups" about the ALS a few months ago and left it at that, figuring it would filter down the...
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