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  1. planningguy

    Almost out the door

    Well, we're just about finished getting ready to head out for our trip to the Mayo. The appointment is not until Tuesday. However, one of the beauties of living in a small rural city in northern Wyoming when just coming out of the "sun and shorts one day, blizzard the next," is that our airport...
  2. planningguy

    Odd sensation just need a sounding board

    Just a quick sanity check for me. Lately on my wrists and hands (particularly my left one) I have had a sensation that feels a lot like something crawling on my skin. A couple of times its been bad enough that I've actually looked to see if their was something there. Does anyone else get...
  3. planningguy

    Just a thought

    I just thought I would throw this out there. I had a rough night, turned into a crappy day, and was in one of those, "What else can it be moments," when I read the following from one of my favorite authors: "Were you to live three thousand years, or even thirty thousand, remember that the sole...
  4. planningguy

    MAYO Visit

    Well... I finally got the call from the MAYO, and my appointment is set for April 21st. I am seeing Dr. Bruce Evans. Since we still have a wide angle lense on this thing we're starting with a general neurological approach, though I did notice one of his specialties is cerebrovascular...
  5. planningguy

    Question Regarding Sensations of Warmth

    This is just a quick question as I sit here in limboland. As I have mentioned it seems, like a couple of symptoms are on the move. My left wrist and hand trouble me the most, but I am also having trouble in my elbows and knees. One of the odder things that has accompanied this is a feeling...
  6. planningguy

    UMN Symptoms

    While I sit in limbo waiting for the mitochondrial study to come back, I had a few questions about UMN symptoms. It seems that when discussing lower motor neuron symptoms (weakness, atrophy, etc.) there are dozens upon dozens of alternative causes and diagnosis that get tossed around. However...
  7. planningguy

    Cyberchondria Article

    For those of you who take The Times (in paper of electronic format) there is a really fascinating article on "cyberchondria." It can be found here (you may need to register freely with the Times): http://www.nytimes.com/2008/11/25/technology/internet/25symptoms.html?th&emc=th Basically...
  8. planningguy

    Hirayama Disease

    Has anyone heard of Hirayama Disease, or had any experience with it? I came across an article describing it, and other its predominate prevalence in Asia, it causes many ALS type symptoms with the wrist, forearm, and hands. Apparently it is usually a nonprogressive "benign" motor neuron...
  9. planningguy

    The unexpected detour

    I thought long and hard about a new thread title, but couldn't really come up with anything. So you get what crossed my brain after a long day at work. For those who haven't read my other thread, basically this is kind of a new page in my thinking and approach to figuring out what's going on...
  10. planningguy

    New York Times Article on Aicar

    I saw this article in the Times today and thought it might be of interest to some here: http://www.nytimes.com/2008/08/01/science/01muscle.html?_r=1&th&emc=th&oref=slogin Although the drug would not directly address the effects of ALS related motor neuron damage, it may one day help improve...
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