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  1. poppy62

    Clive has left the room...

    My poor dear Clive was taken poorly Saturday night and we went to A&E by ambulance at 9.30pm. He was so brave, given fluids by IV and oxygen and slipped away ever so quietly at 5.05am on Sunday 18th November 2012. He suffered no distress whatsoever and his breathing just slowed til it stopped. I...
  2. poppy62

    My Pals doesn't want to go out anymore..

    We reached a new situation today, it's been coming for a little while. My Pals doesn't want to go out anymore, not even to see his elderly parents and sister who live 40mins away by car. His mobility is failing but he can still do a few steps, enough to get in and out the car, transfers etc. He...
  3. poppy62

    Looking for something new to watch...

    We do enjoy a good film, whether it's mystery, adventure or it's drama with a good story or a true story, sci-fi (Clive's favorite) or family/Disney for me :) Looking for inspiration now as we have watched most of our favorites a few times and are looking for some new films to watch. All...
  4. poppy62

    gibberish blog comments?

    Two different names have posted comments on my blog and they don't make any sense at all. I looked them up, one of them is banned. What can i do about this? Can they be removed? Help please...
  5. poppy62

    What to do?

    After several nasty choking episodes this last week, hubby is scared worse than ever to try and eat and drink. This is the second day of very poor intake, his wee is darker, output is lot less. His eyes are starting to look sunken. His feet look a bit fatter. I'm scared some serious dehydration...
  6. poppy62

    Bulbarian dog whistle needed..

    Any ideas for a 'bulbarian' dog caller please? something ear-friendly... Dog is annoying him now because she goes out the garden and he can't whistle or call her, she is practically ignoring him... and that's not going down well! He bangs the doorframe to get her attention but that just scares...
  7. poppy62

    To poo or not to poo..

    If it feels like there is no 'pushing power', does this mean the muscles inside are being affected now? Hubby says its not just arms and legs anymore...is this an advanced symptom? and does the diaphragm get it? How would that affect him? Just trying to work out what to expect...
  8. poppy62

    SO many questions...

    Newly diagnosed hubby. Getting weaker in arms and legs now, but mainly bulbar problems for at least twelve months. It's all happening so fast now. He is 57 this year. Its been so helpful to read everyones posts. The neuro, gp and books can describe the disease but they dont prepare you for what...
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