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    Dealing with ssi

    Hi, Joni, I haven't been on here in a long time, but I live in Lanett. AL and was so surprised to see you were from Valley! My husband died from ALS in 2007 and now my brother-in-law, not blood related, is suspected of having it. Hard to believe. Anyway if you want to share or talk, let me know...
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    Runny nose

    My husband had bulbar symtoms and never had a runny nose with it. Maybe she is starting with allergies now. Anyway, he never had anything like that.
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    husband passed away

    Hi, Elo, So sorry to hear of your loss. How old was your husband? Mine passed away on Aug 19th after only 11 months of being diagnosed. It is lonely. He went down so fast and even though you know that is what is going to happen, you are still not ready for it. My prayers are with you as you...
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    Husband's passing

    Just wanted to let you know that my husband, Ralph, who had bulbar ALS and was diagnosed Sept 14, 2006 passed away on Aug 19th. He is enjoying his heavenly homecoming but we will miss him here. I have not posted that much but come and read other people's posts and they have always been so...
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    Dick's passing

    hi So sorry to hear about your husband. God's grace and peace is what keeps me going each day. I will be praying for you. You have tough days ahead, but remember you have the forum to come to and encourage you. We are all in this together and share each others pain. Susan- gapeach
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    Speaking Devices Etc.

    Hi, Rhonda, My husband has bulbar als and is now using a litewriter and a laptop with etriloquist on it. We just got back from the beach and he used a dry erase board for the beach last week. Good luck and have a great time! gapeach- Susan
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    More activity, or less ?

    hi The told my husband at Emory in Atlanta that it was ok to walk and swim but not try to work out at the gym to build muscles because it tears muscles down first and with a muscle disease you might not be able to build back up. Also to do the walking and swimming within reason - don't overtire...
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    New treatment for ALS

    Has anyone heard of some new kind of treatment that is being used on paralyzed and ALS patients to get the muscles back working. Something they implant under the skin on the chest? A man I work with was telling me he heard something about it on TV this weekend. He couldn't remember alot about...
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    To tube, or not to tube (feeding tube pros and cons)

    Hi, Speechie 1 My husband immediately after being diagnosed was instructed to get a feeding tube which he did 1 1/2 weeks later. He can still eat some and is using his tube for water and ensure right now. We felt like it was something that would still give him quality of life and it was quite...
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    Is Strength Training a good idea?

    hi, earth mama We went to Emory and they told us not to try and build muscle because this is a disease that affects the muscles and building muscles involves tearing them down first before they are built up. They told us my husband could walk and swim to stretch the muscles but that was all...
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