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    Comfortable Sleeping Positions Help

    My husband has always had trouble sleeping...For him...sleeping is positional. He always separates his legs with pillows...I never really thought his sleeping problems were ALS related, but could be. He claims the same thing, he can't get his mind to shut down. I don't always hear him when he...
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    New issues

    Been out of touch for awhile...computer issues. Also have been having more health issues. My husband is now experiencing excessive salivation, and really struggling to keep up with it. He now carries hankies, as it is easier for him to just spit, than to try to swallow. I don't know that it...
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    urinary retention

    Has anyone had any experience with urinary retention? Is this another muscle that can be affected by the ALS?
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    Not coping well with fld

    Hi, Had my husband in the ER this morning...stomach pain, we thought it was due to constipation...turns out his bladder was full, and unable to empty it. He came home with a catheter...he's really unhappy now. Wondering if urinary retention is also one of the eventualities of ALS.
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    Not coping well with fld

    Hi, I am new to this forum. My husband was diagnosed about a year ago with ALS. He is now developing frontal lobe dementia. This has been steadily getting worse for about the last 3 months. At this point when he has had a manic episode, he doesn't seem to remember that whole day. I took him to...
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    Husband with ALS, not coping well

    He went the the VA clinic in Walla Walla for testing. They thought that he had an abdominal aneurysm, thankfully it wasn't the case. The took som x-rays, and deteremined that he was impacted and told him he needed to see his dr. Until he is ready to go back to the dr's, it won't happen. I am...
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    Husband with ALS, not coping well

    No, not at this time. He refuses all help. Thinks that we are trying to have him commited. He seems to know that he is having some serious issues, but he will tell you he just doesn't care anymore.
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    Husband with ALS, not coping well

    He is on a variety of meds. Methadone and dilaudid for chronic back pain (since 94). Baclafen for the muscle spasms, and twitching. Muscle relaxers, rhilutek, serequel for the mood swings (for bi-polar disorder I think that he has stopped taking this.) Blood pressure meds, and asthma meds. I...
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    Husband with ALS, not coping well

    I appreciate the responses. It carried on through today. He doesn't remember going to the Vet Clinic in Walla Walla. Insisted we needed to go. Was up at 2 in the morning. Waited until 8, then started calling around. Doesn't seem to be much help out there as he is refusing all help. We are headed...
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    Husband with ALS, not coping well

    Hi, I am new to this forum. My husband was diagnosed with ALS a year ago. We have been so busy with doctors, and finding out that not many are very familiar with ALS. We have a new challenge, he is now experiencing FLD. At a loss at how to help. The medication doesn't seem to work all the time...
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