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  1. S

    thank you for your post...i think she is scared of dying...losing the ability to speak..overall...

    thank you for your post...i think she is scared of dying...losing the ability to speak..overall unability to use her body. She is completely reliant on her husband to do everything...She does have the tobi machine but has had difficulty using it and has given up on it...hopefully she will keep...
  2. S

    Good Morning...my youngest sister who is 48 was diagnosed with ALS in March 2011...i have come...

    Good Morning...my youngest sister who is 48 was diagnosed with ALS in March 2011...i have come out to visit her as i live 3000 miles away...she is in a wheelchair, no use of hands, legs, can barely talk and has a feeding tube...she is Terrified....is there anything that i can say to help her...
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