Search results

  1. HelenL

    Hydrant Drinking Systems

    I use a camelbak and hang it next to my bed at night. I use a carbiner (sp?) Clip to hang it from my pac when I go out.
  2. HelenL

    Loss of finger movement

    First off, congratulations on your baby! I had lots of things happen or get worse while pregnant, so it may be possible that its related... having said that, has your wife ever been tested for Lyme disease? I understand that the hand cramping is not uncommon. I would skip the ELISA test and have...
  3. HelenL

    Need advice please.

    I agree with Vickie and Elaine... the symptoms don't all start that quickly in different parts of your body. The neurologist would be looking for signs of muscle damage in the bloodwork, and your body's responses to that thumping, tapping and scraping he does with little hammer. While you may...
  4. HelenL

    where is everybody?

    Um... that would be a mojito ...
  5. HelenL

    where is everybody?

    Great thread Barbie! I'll have a monitor if Kim hasn't drank them already! I also have been typing less as my hands rebelled... si had s diaghram pacer "installed" in July, along with a peg which I don't use yet. School starts tomorrow for one son, next week for another son (both in high school)...
  6. HelenL

    Hi Kim, so good to hear from you, you sound so much better! Sorry I'm not posting as much, but...

    Hi Kim, so good to hear from you, you sound so much better! Sorry I'm not posting as much, but still enjoying reading them. Have a great holiday weekend!
  7. HelenL

    Hi thompsonds3, yes there are a few people on this forum who can be a little sharp at times… But...

    Hi thompsonds3, yes there are a few people on this forum who can be a little sharp at times… But you have to remember that sometimes it's for good reason. At any rate, it's a good idea not post personal information. If you have enough messages sent you will see that you can send private...
  8. HelenL

    Frustration with No Definitive Diagnosis

    The EMG is really the definitive test for most of us... I went to a clinical trial at MGH, you're in good hands there.
  9. HelenL

    Hi

    Welcome to the club no one wants to be in! This forum is a liveliness to me and hope you find it helpful as well.
  10. HelenL

    Feeding tube and DPS

    Mine is set really low still, just feel a flutter inside. The wires are tiny and I don't really notice them much just a wire going from the connector on my stomach to the battery pack. I think you should be fine with it. I keep a small bag on the back of my pwc which holds the battery pack.
Top