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  1. EGBAR

    smile a little

    I am passing this on because it definitely worked for me today, and we all could use more calm in our lives. I looked around my house to see things I'd started and hadn't finished, so I've managed to finish off a bottle of Merlot, a bottle of Chardonnay, a bodle of Baileys, butle of wum, tha...
  2. EGBAR

    My Daughter

    As you all know I asked for help here in telling my daughter about my condition. She came in Aug and I sat her down and told her. She is a Senior at ASU in Phoenix, and applying to Vet school. I was very worried with how she would handle this, and as someone here told me to give her more...
  3. EGBAR

    Travel Plans

    Well this Thursday I am off to Ohio to tell my parents of my recent diagnosis of ALS. It has been a very hard decision to even tell them. They are 78 years old, and the last thing I want to do is make them worry and fret over me when there is nothing they can do. I live 800 miles away and...
  4. EGBAR


    I have been a lifelong sufferer of Asthma, My dad has it his Dad had it and so do I. In March after about six weeks of cramps and soreness, I awoke at 3 AM and could not breathe. My wife took me to the ER and it was discovered that I had Bi-lateral Pulmonary Embolisms. These were unprovoked...
  5. EGBAR

    Thank you to the community

    I cannot tell you how much this forum has helped me and my wife cope with this last week. I cannot say that I am completely out of the scared out of mind-anxious stage, I am still having my moments. Most often when I wake up at 3 in the morning, it is hard to get my mind to relax and not start...
  6. EGBAR

    My first day with ALS

    Hello everyone! Although I have been watching and reading your comments for a few months I didn’t actually join until yesterday. I wasn’t able to post anything yesterday due to my high anxiety of being diagnosed on June 7th the day before. As with many people I have been doing research and...