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    I'll do that, yes. Thank you!

    I'll do that, yes. Thank you!
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    ALSA Chapter Support Group?

    You are all wonderful, thank you for replying. I'm sorry my experience wasn't some kind of fluke, like I was hoping. And, AKmom, "we don't work with people who have whatever you have" is, flat out, the most offensive thing I can imagine being told. I'm very sorry for that person's insensitivity...
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    ALSA Chapter Support Group?

    AKmom, I'm sorry that you've had a similar experience. And yes, it seems that PLS is almost unfathomably rare. What a way to be special, right? Thank you very much for your reply.
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    ALSA Chapter Support Group?

    Thank you. Good luck to you.
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    ALSA Chapter Support Group?

    I'm not really in the mood for this. I did not ask a security guard or a dishwasher. I called ALSA. The only person with whom I had the opportunity to speak appeared to be unfamiliar with PLS, the MND for which I was seeking support group information. I am simply asking if anyone with PLS has...
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    ALSA Chapter Support Group?

    Well, sure, a local doctor being unfamiliar with all things MND is par for the course. But someone at ALSA? Thanks for the reply.
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    ALSA Chapter Support Group?

    Hi everyone, I haven't posted much, so I'll restate here: My mom has a preliminary diagnosis of PLS after 2+ years of progressive symptoms starting in her left foot. She uses a wheelchair full time now, and shows signs of nerve denervation in her other foot/leg and slightly in her arms (EEG...
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    Introducing myself: Mom has PLS

    Thank you for being so kind.
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    Hello Jessie, I saw a post from you about your mom's negative outlook and really identified...

    Hello Jessie, I saw a post from you about your mom's negative outlook and really identified with feeling overwhelmed when you're made to listen to every miserable detail. Ugh, it's so hard. I sent you a friend request. Gypsy
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    Introducing myself: Mom has PLS

    Thank you both.
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