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  1. Pkmado

    Thank you

    To thank everyone on this forum who ever answered a question, shared in the pain, took the time to console or just shared in the experience whether it be difficulties or joys. Phil and I took great comfort in knowing we were not alone. I am most thankful that we did not anticipate that the time...
  2. Pkmado

    Have a nice day

    So here we are an hour from our home. Phil came into The hospital here for a PEG. He can no longer swallow his food. The Dr here specializes in ALS patients pegs. The VA in our area has been sited for unsanitary conditions. All over the news validating our decision to have the surgery do e...
  3. Pkmado

    Just me again.

    I write in my notebook an then cannot remember if I ever even posted so this is from Jan. 25. :confused: Hello everyone. I have been focusing on the bed positioning thread. My Pals has had new difficulties especially with bed positioning. Phil still has use of his legs. His upper body is...
  4. Pkmado

    Happy Holidays to Everyone

    Another Christmas with ALS. Wonderful neighbors and friends and my Pals still able to sit somewhat and play Left Right Center and we left having won two of the pots! Attended another holiday party and met anther couple, husband in his fifties about 8 months in with ALS. His speech very...
  5. Pkmado

    Just a few stumbling blocks.

    First of all I love my Pals. He is a wonderful caring person. Sometimes things just get messed up. We are pretty much able to keep things on an even keel. As ALS progresses new deficiencies occur. I shower, dress and tend to all hygiene for my Pals. Shaving is a *****. We have tried an...
  6. Pkmado

    Forum activity

    Sometimes I write posts on notepad and then don't post them. Like everything with ALS if you wait just a bit it no longer applies. Sometimes you just feel like your whining even though you know your just venting. Pointing out the lack of communication has promoted me to share one of those notes...
  7. Pkmado

    Massage chair or table and other thoughts

    Phil loves a massage. I am going to purchase a table or chair. I am not sure which. P thinks a chair as he will be able to get in an out of it better since his legs are good. I think a table for total relaxation. of course it is difficult for him to get on and off. We have a retired nurse as a...
  8. Pkmado

    Still A Happy Spring

    Hello and hope all is as well as can be with everyone. My pals has shifted once more into a weaker state. He has been barely able to lift his can of beer. This sounds like a petty concern but I am certain his beer drinking is what is responsible for his lack of weight loss. His arms are like...
  9. Pkmado

    Miss my husband. Who is this angry guy?

    My husband has just had to sell his beloved truck. I know not driving is huge. He has not driven for 6 months. He has been so difficult. This Makes me cry which makes him even more mad. I still need to work his arms and it seems impossible to move him and myself out of this situation. Any...
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