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  1. StillSteve

    Phase III: Dexpramipexole

    I've not checked in here in awhile, and I'm somewhat surprised to see that there has been little discussion of the trial. I hope things are going well for all of you on the trial and for those of you following it with interest. Just recently I had my four-month evaluation. My progression seems...
  2. StillSteve

    Hi Marie, I've been absent from the site for awhile. Logged in today when I read of the passing...

    Hi Marie, I've been absent from the site for awhile. Logged in today when I read of the passing of Abbas Child on PLM. Very hard to hear, she was such a favorite. Anyway, just wanted to let you know that I think of you and Jim often and hope you are doing well. Take care, Steve
  3. StillSteve

    Thanks, Lee. I haven't been here much lately, but logged in today to express my sorrow over the...

    Thanks, Lee. I haven't been here much lately, but logged in today to express my sorrow over the passing of Abbas Child. Such a shame. -- Steve
  4. StillSteve

    abbas child/Annie

    I've been an infrequent visitor to this site of late, and hadn't seen this thread. I've just learned of Annie's passing on PLM and am so sorry to hear of it. What a sweet and lovely person she was. I just logged in and haven't had a chance to read all of the tributes to her here, but I'm sure...
  5. StillSteve

    Phase III: Dexpramipexole

    There will be a second phase III trial of dexpramipexole. Here's an excerpt from a post by Persevering on PLM: >>> I heard some more official information last week on a second Phase III clinical trial of Dexpramipexole. The current trial is called EMPOWER. The new trial is ENDEAVOR. The new...
  6. StillSteve

    Buzzard Status

    Barry, I'm something of a stranger here, though I've been following the forum for about a year-and-a-half now. I just want to echo what others have said here so well: you are an inspiration and a heckuva funny guy. I don't check in often, but when I do I never fail to read your posts. I look...
  7. StillSteve

    Phase III: Dexpramipexole

    I've entered information relating to my two-month clinic visit I showed overall improvements in strength measurements, though I really don't know if they are significant of anything in particular. My FVC test number declined from 90% to 86%, but I'm dealing with a upper respiratory track...
  8. StillSteve

    I tried (twice) to send you a private message, but I don't see it in my out box. Who knows...

    I tried (twice) to send you a private message, but I don't see it in my out box. Who knows why? I sent an email to you and maybe you've seen that. I hope to see you and Jim at the ALS Walk on the 24th. Steve
  9. StillSteve

    Anyone on the Dexpramipexole trial?

    I started last Thursday, so I've completed one week now. If I'm having any side effects at all, they are very minor. I have had some insomnia, but I hadn't really thought of it as being anything of significance until reading this thread just now. Maybe, I guess. There's no way to know. I...
  10. StillSteve

    Phase III: Dexpramipexole

    I just started the Dexpramipexole phase III trial today in Minneapolis. I am patient number 10 at this location. Two things of interest I learned from my doctor today: - A second phase III trial (a second round?) for this drug will be started in areas not covered in the current round. She...
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