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  1. 08PT13

    29 Years old unknown MND. Is it ALS/PMA/MMN?

    @Nikki J Appreciate your response. Interestingly the second neurologist I met in the US was from Houston Methodist and she suggested meeting the pain management. Will try contacting Dr Stanley Appel. Just to clarify, do you think this could be PMA?
  2. 08PT13

    29 Years old unknown MND. Is it ALS/PMA/MMN?

    Thanks for all the quick replies, I thought I will just share some more details about the muscle wasting, R vs L Lower 1/3rd - 2 inches difference R vs L Middle 1/3rd - 1.5 inches difference. Most of the wasting is on the lateral side. Attaching an image of my muscle loss and some twitching...
  3. Twitching.mp4

    Twitching.mp4

  4. ThighMuscles_0619.jpeg

    ThighMuscles_0619.jpeg

  5. 08PT13

    29 Years old unknown MND. Is it ALS/PMA/MMN?

    @Clearwater AL, Please find the attached EMG summary/impressions.
  6. EMG_1.png

    EMG_1.png

  7. EMG_2.png

    EMG_2.png

  8. 08PT13

    29 Years old unknown MND. Is it ALS/PMA/MMN?

    @KarenNWendy, Thanks for your reply. As you mentioned, No doctor has called it ALS because of zero UMN symptoms, no slurred speech or foot drop. My muscles not working is also limiting me a lot, example post the CSF test I had to take rest for a week which made me difficult to push my blanket...
  9. 08PT13

    29 Years old unknown MND. Is it ALS/PMA/MMN?

    Nikki, I agree with you on Myositis and Neuron disease confusion. The neurologist who said myositis could be a reason was not based on my EMG rather on physical examinations. Like I said he is renowned and old neurologist who doesnt meet many patients. I met him through family contacts and he...
  10. NCS_Oct2019_2.png

    NCS_Oct2019_2.png

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