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  1. Lkaibel

    Merry Christmas, Happy Holidays, and Farewell for Now

    I just wanted to wish everyone the best possible holidays and New Years. I also wanted to say thank you for all and everything this forum has given me. I cannot say enough for the many wonderful people I have “talked” with here, even meeting some of you live this past summer. In the future, I...
  2. Lkaibel

    Random Thoughts for New CALS

    Hi All, Some will know that my husband passed in March this year, a few months short of three years from Dx. I’ve had about eight months to chew on how things went for us, and what worked and what did not. We are all individual, our situations unique but in the interests of maybe helping...
  3. Lkaibel

    I’d Like My Husband to Know...

    If my Brian could hear me I’d tell him... I love him more than anything in this world, even if I told him that already. That the park where we once spent a beautiful Art Festival night, the Mill City Ruins is being remodeled. That i’m starting to work with ALS Advocacy, not to dwell on what...
  4. Lkaibel

    The Next Part of the Journey

    So, here I am exactly one week out from my husband's death. It was really only after he actually passed that I have started to realize the absolute hellfire we went through together. There was beauty, love, and moments of joy for sure. I am very sure I never felt closer to or loved another...
  5. Lkaibel

    Brian Flies Free

    I woke at 3:00 AM to give Brian his meds to find that he had passed on. I am happy for him that he is free of the body that had become his prison. It was a relief to be able to call hospice and not even have to have them come out. The University of Minnesota Bequest Program was here by 4:30 AM...
  6. Lkaibel

    Hold on Tight...

    Then lose it in the car! My mom is in a nursing home I need to get her transferred to another ( not urgent, another story I just dislike the place muchly). Brian is progressing because ALS moves just one way as we know. Next up is more homecare hours, next up is the simple reality that this...
  7. Lkaibel

    On a Lighter Note

    My husband truly loves me and has my best interests at heart. I was not offended in the least when he told me today that he would like me to see other men because then he would not have to worry about me being alone. I said Sweetie, your heart is in the right place but when would I get time to...
  8. Lkaibel

    A Long, Slow Downhill Roll...

    My husband called me up today at work and said that he was not going to be able to let our housekeeper in because no matter how he tried he would not turn the doorknob. He DID end up getting the door open. A Life Alert is coming our way, and that will have a key box on the front of the door and...
  9. Lkaibel

    Today

    Today, I am again confronted with the simple fact that I cannot believe that everything we have been to each other is coming to an end. Maybe it’s 8 months, maybe three years but we have already lost much and we will lose more and then I will lose him. I think of the things I will do after...
  10. Lkaibel

    Game Changer

    I am beginning to think Brian is going to go a LOT further with this than we previous thought/planned. That is great news in a lot of ways, but also a game changer. Since things at home have thus far been a lot easier to modify than I had thought earlier on, and I am confident we can keep...
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