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  1. Signe

    Swallowing air with bipap use

    Didn't know if this warrants a new thread or not, I had tried to see if I could find anything here similar to review but I don't. So here goes. I knew I must be swallowing air with my bipap right from the beginning. I'd wake up just totally gassed up. I researched it and read it would...
  2. Signe

    questions about clinic and a study

    Yes it is Wednesday, boy the fall has gone by fast. We're having snow showers here today and it is going to be a long winter I think. My son is improving from his infection and will be able to come home tomorrow, but still needs to have daily iv vancomycin at the local hospital. I also have...
  3. Signe

    Pain what really helps.

    I have been having so much trouble with pain. It feels like someone is scraping my bones with a dull knife. I've tried all the otc meds and most of the creams. 2 creams help with the muscle pain, both have arnica, one with lidocaine and the other CBC. But I have a deeper pain that nothing...
  4. Signe

    Talked with Family

    I just told my 84 yr old father I have PBP with ALS, as I understand it. my dad has been very aware of my changing health but we had been told repeatedly by doctors that this wasn't ALS so the diagnosis was quite a shock. I am very worried about my dad now, he has been so strong and gone...
  5. Signe

    New Diagnosis of Bulbar ALS

    For almost three years I've had symptoms and have had so many tests and experiences I can't even begin to explain but yesterday I received the diagnosis of Bulbar ALS. Last year I was told it was neurosarcoidois, I was told it was a conversion disorder, I was told it was myasthenia gravis. I...
  6. Signe

    Frustrated and still waiting for answers

    Well I can't believe I came back to this forum but after 6 months I'm still without symptom improvement. I haven't been diagnosed with anything. I gave my heart to these symptoms being a stress reaction and or anxiety, I realize stress can cause a lot, but after 6 months nothing is better. If...
  7. Signe

    Stress reaction or not

    I am needing someone to talk with. I don't know what is wrong with me or if anything is. I am trying not to diagnose myself or dwell on my symptoms but this is difficult and I must admit adding to my issues. I don't want to wear my family out with my concerns. This is my current situation...
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