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  1. C

    constipation

    Hi all, I'm looking for advice as to dealing with constipation. My dear friend with ALS is having an awful time with this. I imagine certain foods would be helpful for prevention, but what to do when he's having the problem? Thanks for any help anyone can offer,
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    sleep and ALS

    oxygen Thanks for your respose! So are you saying that if his doc who says he should be on oxygen at night is not an ALS doc, there may be problems he isn't aware of? He did have pnemonia and was in hosp. but home now. Using oxygen only at night.
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    sleep and ALS

    I have a few questions concerning my friend with ALS. He says that while he sleeps, his oxygen makes him cold. He even gets a "cold headache". Is this common? Also am trying to figure a way that he can get a drink when needed during the night. Have to hang a container with straw on the bedrail...
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    I Feel Like Dying

    best friends Sandee, We both are in the same boat. My dear friend has had AlS for several years now, and he has lost use of most muscles. Still, he is wonderful to be with, keeping a positive outlook most of the time. It's hard to see, and so scarey. But I get so much pleasure being able to...
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    20+ months...no answes...when /how do I just give up

    tell it like it is...... :?:Willow, you have every right and should not be sorry for expressing your frustrations! I admire you for picking up and moving on one day at a time. Hugs, CF (Crystal)
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    I am losing my mind!

    humor You "guys" are great! A sense of humor is sooooo important and wonderful. My Jimmy cannot use his arms, is in a chair, losing his voice, and yet, he smiles the most beautiful smile and his sense of humor is still strong. How I admire that! Of course he has his terrible feelings of sadness...
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    20+ months...no answes...when /how do I just give up

    I feel for you.......nothing I could say would help, but I'm glad you have this place to vent your feelings, and people who care and can relate. At least I hope that helps. Crystal::?:
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    Caregiving

    Hi Irma, and thanks for your response. I hope to talk more with you. Sounds like your son was very lucky too, to have a loving Mom to care for him. It's heartbreaking to think about. I have such respect and compassion for my Jimmy's Mom, that she took on the huge job of caring for him. I know...
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    Caregiving

    Hello to all, I'm so grateful to everyone for "telling it like it is". In my situation, it's a bit different than you with spouses, that you have spent years loving, and now must (and of course want to) care for. My friend, who I met about 5 years ago, just had been diagnosed. As he got worse, I...
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    Caregiving

    Thanks To All It is bittersweet to read all the replies of encouragement and support. Hugs to all of you. This is the worst thing to have to endure, watching, waiting, helping, and feeling helpless. Wondering how long it will go on is so hard, and wanting to help our loved ones not suffer...
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