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  1. KarenNWendyn

    Mouse support for iPad

    I found this video which explains how to use a mouse with an iPad for accessibility. Toward the end of the video, he discusses the “tracker pro head mouse with dwell activation.” I haven’t tried it but it sounds like it could help someone with no hand function use an iPad.
  2. KarenNWendyn

    Losses, a PALS’ perspective

    There is an excellent thread on losses in the CALS sub-forum: Losses I thought I would start an analogous thread here in the PALS sub-forum. Our experience is personal and parallel to the CALS’ experience. It is happening to our bodies, day by day. We have to continually attempt to adapt...
  3. KarenNWendyn

    Neck collars

    My PT recommended a Headmaster collar. I did a search on this forum and also the reviews on Amazon, and feedback seems pretty mixed. They aren’t cheap — $100 or more. I’m wondering if anyone on this forum has had a great experience with them and recommends this type of collar. I saw “Shanes...
  4. KarenNWendyn

    Questions to ask a prospective caregiver

    My spouse/ CALS wanted me to ask this here. We will be conducting face to face interviews with a couple of potential caregivers next week. What are good questions to ask during the interview? We’re thinking we want a team of 2-4 people who can trade off, maybe starting people off with 4 hour...
  5. KarenNWendyn

    Radicava: updates on usage and cost concerns

    We haven’t had any recent threads on Radicava. Those of you who are taking it, do you have out of pocket expenses for the drug? Have you experienced hassles in getting it? How many have been on it and then stopped it, due to expense, side effects, or lack of perceived efficacy? If you...
  6. KarenNWendyn

    Effervescent N-Acetylcysteine, does it work for dry mouth?

    N-Acetylcysteine (NAC). I first learned of its use for treating Acetaminophen overdose. It thins out respiratory secretions by breaking up disulfide bonds in mucus. Many PALS use this to thin out mucus. My clinic nurse recommended it for my really horrendous dry mouth. Has anyone here...
  7. KarenNWendyn

    Transfers: Sliding board vs. Hoyer

    The topic came up in the thread on ADA travel issues. I thought it was a good topic, worthy of its own thread. Some folks here have experience with sliding board transfers. Others require mechanical lifts. I don’t yet have experience with either, so I’m hoping experienced members will...
  8. KarenNWendyn

    Too disabled for ADA?

    There’s no place like home. The idea of being too disabled for ADA occurred to me at a recent stay in an “accessible” vacation rental. The “standard” ADA accommodations that I’ve observed in public facilities, hotels, and vacation rentals seem to include a barrier-free entrance into a...
  9. KarenNWendyn

    A day at the beach

    We made it out to the Oregon coast for Labor Day weekend and rented a place that had this beach wheelchair. It took 3 people to help me in and out of it, and my friends and family took turns pushing me over sand dunes and finally down to the shore. But to actually be on the beach and be able...
  10. KarenNWendyn

    The story game

    New game idea. The person who starts comes up with one or two sentences to start a story. The next person adds another one to two sentences to continue the story. People keep adding a sentence or two. It can take all sort of fun twists and turns. Let’s see where it goes. I’ll start: It...