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    Hey there sure!

    Hey there sure!
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    Advice after 5 years of being ok

    Hey all, just wanted to understand atrophy better. As i previously mentioned, my left thigh is bigger than my right. My right being thinner by 2cm even if i am right dominant. My question is, doesn't atrophy come after weakness? Meaning thinner muscles happen if one does not use that muscle at...
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    Advice after 5 years of being ok

    Thank you both. I have just one last question. When does joint pain come in then in ALS? And basically, pain in general? I read this in the stickies: "There can be pain in ALS, but it is almost always well into the disease process, when the muscles can no longer hold the joints together" and...
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    Advice after 5 years of being ok

    Sorry, Laurie. You mean you've encountered people who have delayed onset after roughly 5 years? Thank you all, really. I think what's bothering me is that the twitching never really went away. I just learned to live with it. Now my right leg has become a hotspot for it. My calf, bottom of my...
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    Advice after 5 years of being ok

    Hi Laurie, appreciate your thoughts, really. Should I be worried about the asymmetry? Not sure if there's atrophy there and honestly all I can say is that there's pain on my knee joints, thighs and calf and they aren't identical to my left. A feeling spasms as well. I don't know if I'm weak but...
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    Advice after 5 years of being ok

    Hey, nope I haven't. I was prescribed pain meds for my knee. If inwere to base it on my observations, I'd say that the change in muscle proportion happened fairly recently. My right thigh is thinner by 2cm than left.
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    Advice after 5 years of being ok

    Hello everyone. I never thought I'd be back here, but here I am again. Some might be familiar with me as I was here 5 and a half years ago when I was 23. I came here because I had body wide twitching. To cut the long story short, an initial EMG showed that I had ALS (Denerv, fasci etc). I did a...
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    For the young ones concerned and anxious

    Yes. I had a neurologist and a neuromuscular specialisy (neuromuscular specialist has been in the field for more than 50 years. She was very old) with ALS. All it took was a second opinion to turn that around. Misdiagnosis just happens.
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    For the young ones concerned and anxious

    Thanks as well, Nikki. You guys are doing such an amazing job. The least I could do is actually just share my story. That misdiagnosis DOES HAPPEN. Perhaps rarely but it does.
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    For the young ones concerned and anxious

    Hey everyone, not really a post of symptoms or whatever i've been feeling but i hope this gives somewhat comfort to the ones who are worrying especially the younger ones. I was here in this forum a year ago, posting about my worries and symptoms. Later on, I had to transfer to another...
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