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  1. R

    Toileting help/Sling advice

    Hello you all, As you can imagine, I have been too busy to write. But now I come back asking for help. We have been doing pivot transfers from bed to PWC to toilet, etc, but it is time for the next step. I do use a Hoyer with a U shaped sling to get him off the toilet. But then once he's...
  2. R

    Right to Try

    Hi. Does anyone have experience getting not yet approved drugs under the Right to Try Act? My PALS wants to try to get AMX0035
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    Emergency preparedness

    So my PALS has not had any bulbar symptoms so far. The other day he was taking a pill and the water went down the wrong way. He was kind of choking and gasping. He was fine, and it could have happened to anyone, but it got me thinking that I need to be prepared for all kinds of breathing...
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    Help planning bathroom please

    Hello. I am new here. I need help planning a bathroom for my husband who was diagnosed in November. We are fortunate to be able to build from scratch. We have planned a large roll in shower with no barriers. And I have read the advice that it may not be useable soon, but then again...