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    Missing Dad on Father's Day

    This day hit me with a slam. I kept picking up the phone wishing I could call my dad, and wondering who to call instead. I called my Uncle who lost his wife just over a year ago and left a message. I hope he's out somewhere having a good time with his grandson. I'm really supposed to be writing...
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    Air Cleaners?

    Capt Al, My mom uses an air cleaner in her bedroom to help with allergy problems. I'm going to check out what brand she has and find out about it. Could you please tell me what web site you looked at that had the lowdown on these aircleaners? Thanks. Although, if I find out it might have been a...
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    Breathing exercises?

    This has been on my mind since I lost my dad Dec. 23. He had just been diagnosed a few months earlier, though he'd had symptoms of muscular weakening for several years. I think older people don't get diagnosed sooner because many doctor's don't look farther than "old age." Anyway, he was given...
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    Hospital bag

    Since my father passed away (Dec. 23) I have tried to figure out what else of my family's experience might help another person. This is one thing I came up with. We all rushed to the hospital when my father had a breathing emergency with little thought to what we might want or need while there...
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    Ms-contin and bi-pap

    My dad is having further difficulty breathing, down to 56% lung capacity form 70% six weeks ago. This was not quite enough to qualify for a bi-pap, but when they did a blood test, they discovered that his blood oxygen level is low enough that he should be on a bi-pap plus oxygen. Hopefully he...
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    Neck braces

    My dad's version of ALS started in his backand neck. He still had reasonable arm and leg strength, but his back just started to keel over, and he couldn't hold his head up. For 2 years doctors were telling him it was osteoporosis ( but his bone density test didn't show this). I don't know if...
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    Living Will

    My dad is going in to get a PEG tube placed tomorrow morning. The doctor told my folks to review their living will, make any changes necessary, and bring it with them. This is a scary thing to think about, and nothing really happened about it. The document currently says that in the event of a...
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    Wheelchairs

    My dad has been using a wheeled walker for about two years, but he is likely to need a wheelchair sometime in the near future. I took him in to try some out, and it seems he will need many of the so-called optional features, like recline (not just tilt), special cushions, and a curved headpiece...
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