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    My Husband Jorge Lost His Battle To A.l.s.

    Dearest Paty, I have thought of you so many times during the past six months. I am so sorry for your loss. You were amazing in how you hung in there and took care of your Jorge. Now be gentle with yourself and take care in your grief. Sending you peace and love, Beth (former CALS to husband...
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    Nevulizer Question

    Hi Rich--Yes, we hooked the nebulizer up through the Bipap....my husband couldnt be off Bipap for more than a minute or so without big stress, so we found a "t" that hooked into the hose up near his mask....because of the in and out of the bipap he felt he didnt get a complete dose each time, so...
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    ROHO cushion for recliner chair

    Pam-- For our recliner, we had a 20.25x 20.25 inch ROHO cushion. You will see on the Spinlife link above that there are a wide variety of sizes--you can call and get custom help for all your needs--give them a call and explain your issues and they will suggest best products--veyr helpful. They...
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    Hi Everyone, This Is Paty, Baja California, Mexico, Just Wanted To Say Hi

    Paty.. Good to hear from you--thanks for the update. You hang in there and let Jorge know we are pulling for him. You take care...Beth
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    Laryngospasm

    here are a couple of things we learned about laryngeal spasms... --they are most common in PALS who have asthma, or had it in childhood --they WILL pass so try and stay calm (easier said than done, right?!) --for us it was a sign of my husband needing to be on Bipap, they pretty much went...
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    My mom is now in heaven

    Oh Anne...My heart goes out to you. Your Mom was so lucky to have you (and you her). I lost my husband in July. Thank you for letting us know. Sending you peace during this tough time.. Beth (former CALS to husband Shannon)
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    Near the end

    Citlalli... You are doing all the right things and your love for Andres shines through. You two seem as well-prepared as anyone could be for this difficult transition. It seems many people go in their sleep, or quietly stop breathing, others experience stress/anxiety related to the...
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    ROHO cushion for recliner chair

    ROHO cushion sold RoHo has found a home.... Beth
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    The floodgates are opening...

    ALS daughter.. It may seem hard to believe, but the days and months right after diagnosis are some of the hardest times, if not the hardest, with ALS. Your brain runs wild with all the thoughts of what will happen and how will you deal with it. The despair and grief are strong and real. This...
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    ROHO cushion for recliner chair

    Hi all… I have a large ROHO cushion to offer to a PALS in need for the price of postage. It is the one item that allowed my husband Shannon to live in his recliner chair comfortably as he wanted. We bought it at SpinLife.com and he used it 24 hrs/day for a little more than a year but it is...
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