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  1. J

    3 years and........

    3 years tomorrow since I lost my brother to ALS and....I still feel deep sadness over missing him...still feel deep sadness when I think about what ALS does to a human being....still wished I’d massaged his deteriorating legs with his favorite lotion every day....still wish I’d known then some...
  2. J

    Zinnias for ALS

    Hi Everyone, It’s been a while since I posted but I check in often to see how you all are doing. I have grown zinnias for many years but this year I decided to sell them at the end of my driveway with all proceeds to support ALS. So far it’s been a great success and the powers that be have...
  3. J

    Trustworthy place to donate

    Hi Everyone, Looking ahead my plan this summer is to grow a whole lot of beautiful zinnias to sell to which all proceeds will be donated to ALS. My question is where do you all think the best place to donate the money would be? I would love some input! I’ll be ordering signs to put up in...
  4. J

    I never imagined it would hurt so bad....

    Hi Everyone, I lost my beautiful little brother on September 12, 2017. He was 47 years old with 2 young children. i knew I would miss his presence but never imagined this much. I knew what the outcome of ALS was yet still feel so unprepared. My mind keeps going back to those last few...
  5. J

    Jlynn's Mike

    He's gone. My baby brother is gone. I already miss him so terribly. I feel as though I will not be able to come back from this terrible sadness yet deep down I know that eventually I'll have to. It's so quiet. This big house feels so empty suddenly. My heart is broken.
  6. J

    Mike's journey is almost over

    I am sitting here in a fog listening to the puff and hiss of his oxygen. I wanted to start a new thread but couldn't figure it out tonight. Mikes journey is almost over. He didn't wake up today. Selfishly I wanted him to so that I could tell him that I am so proud to call him my baby brother...
  7. J

    This beast is killing my brother

    I don't write here much but am one that feels like I wouldn't be able to mentally get through this horrible progression of ALS without the people here. Mike is 47. He's my little brother, single with 2 young kids. I happen to be single with 2 grown children and live nearby so I am his main...
  8. J

    Refusing any help......giving up.

    Hi, I have been here before but mostly just quietly listening. Here's our story in a nut shell. My brother was officially diagnosed in December of 2015 although was told he may have ALS a year and a half earlier. Once told that he went on with his life until a year and a half later when things...
  9. J

    Just beginning our ALS journey

    Hi, my brother was officially diagnosed with ALS on December 29, 2015. It rocked our world. He is 45 years old, a single dad with two young children. He will begin the ALS clinic the first week of April. I personally look forward to that as any direction and guidance is greatly appreciated. This...
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