ALS Support Community

I am afraid I only seem to be getting worse. Yes, I made an appt with MND specialist in London (I am in the uk). I am so terrified. I studied lots of profiles and my symptoms just fit young onset als. Most likely bulbar/ respiratory.

i don’t know how we are going to cope with a small baby.

It’s a horrible situation, having a baby and dealing with this it’s just terrible. I don’t have kids. But I have mom who just moved in from Spain, Im from Spain as well but I live in Los Angeles. Let’s pray for a miracle .

Im really, really sorry. When it’s your appointment with the MND Specialist? Why do we have to suffer so much in this life ?

I am seeing the specialist on 7 June. I glad that you have your mum nearby. I know you are worried about her but she would be much rather be with you in this situation than far away. We must keep strong and get through this.

Thank you for your words. Yes my mom is here but was supposed to make her happy and take care of her. Not the other way around...Let’s just keep having some faith and pray fro the best. I’ll will be seing my primary tomorrow to ask her for the third opinion referral . I hope she approve it.

Good luck with the primary, let me know how it goes. And I do hope that we will recover so that you can take care of your mum as you want xx

thank you so much. Be safe and! Enjoy your baby, I’ll be praying for you and your family.