They were tested in Italy back in 2018. Unfortunately I don’t know about the price
ALS Support Community
Georgi Georgiev
Hi Jethro. I paid 1400 for a panel of 23 genes in CeGaT Gmbh. Looking for more comprehensive panel and will need to pay second time. Could you share your experience. It is a pity that we need to pay for what is agreed to be the new norm and should be provided by the healthcare system.
Georgi Georgiev
It is sad that some doctors still think revealing our mutation is only for individual's benefit,
jethro
thanks for reply. i read your post few times, and we are in a similar position, except I HAVE ALS 100% and i care about my children. there are few options:
1. man has 30000+ genes, not all als related are known. when i was diagnosed, standard panel counted 12 geness. now it is 24. so, maybe your father had unknown gene mutation, or poisoning.
1. man has 30000+ genes, not all als related are known. when i was diagnosed, standard panel counted 12 geness. now it is 24. so, maybe your father had unknown gene mutation, or poisoning.