ALS Support Community

So far my local neurologist still thinks PLS, but I’m starting to get some lower motor neuron issues, which can be a little worrisome. I wonder if I’m more like you, a slower progressor...which I’ll gladly take, if that’s the case!

Hi there TippiLeigh - I try to stay positive for myself, my family, and my ALS forum friends. It was not easy to do when I was going through the diagnostic process, but ironically now that I have my diagnosis, my mental state has been better. (My Lexapro/Trazadone combo helps also).

UCSF is a good place to go. I was diagnosed by Dr. Katz at Forbes Norris/Sutter Health also in San Francisco. When we got back to LA, my wife joked that was the WORST trip we’ve ever taken to SF. We needed the laugh.

There's nothing fun about MND, but it doesn't have to define you. I just try to enjoy every day, thankful for my wonderful family (we have 3 teenage boys) and for my slow progression. I'm hoping you're able to hold that PLS designation, but either way, you've got a very supportive community here to help you through the journey!