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  • Wondering about refusal to use NIV ? My husband has a very aggressive from (bulbar) ALS and can no longer walk, talk or eat ( tube fed). He has a NIV , but hates using it, as it provokes panic attacks. He ought to be using it daily as he finds breathing at rest difficult now. I'm wonder what we can do to persuade him to use the NIV. Failing that, what can we expect in the weeks ahead, if he continues to refuse.
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