ALS Support Community

I don't know! ... Well, during 2016-2018, it was just dysphagia. But during 2019, dysphagia progressed and some words were difficult to say, but I don't speak in a slow way though, actually I can speak rapidly... Doctor found weakness in my tongue, and she said it had atrophy and fasciculations. But, my tongue is quiet when resting, no movement. My tongue has tremors when moving it. I don't see atrophy at all.

It's probably not ALS but something else. When is your EMG? I am curious of your outcome.

Thursday! I'll let you know! the outcome. Though I had an EMG, like 4 months ago ... but my neuromuscular doctor didn't trut the results because she is convinced I have fasciculations in tongue (I don't see them!)

. This is super weird. I've been having some swallowing issues with food only since a while and all doctors (I have seen 4 neuros + 1 ALS specialist) say if I don't have issues with liquids it's not ALS.

I've been super anxiious, it all started 4 months ago with twitching around my body and a plethora of other stuff.

Do you have anxiety?

My EMG was clean ... muscles of the face, under the chin (but I believe that He didn't perform it well) ... both arms ... it all was clear .... I hope the same results with the one that is coming

Funnily enough on thursday I see another ALS specialist or their opinion as well, im super anxious.

I had some spontaneous activity in my deltoid but they have dismissed it as nerve root irritation atm. I'm a complicated case with a lot of things going on and horrible anxiety.

We are all in this together ... It is a terrible journey, and it is even more scarier because we are beginning our 30's.

Do you suffer from anxiety as well?