ALS Support Community

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Arran
I’ve got 1 vial to go!
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Arran
Does that test for things like polio etc?
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Fasciculation1
No. It’s an initial screening for autoimmune disorders.
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Arran
I’m not confident anything will come from today’s test, so I had to fast for 10-12 hours! So got there at 9am this morning, they took blood straight away then I had to drink sugar water! Then wait another hour, take blood then 1 more hour and the last vial
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Fasciculation1
That’s very interesting. It’s one more thing to rule out. Of course, I’m hoping for you, this test shows something.
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Arran
The whole time they kept asking me if I felt ok! Especially after drinking the sugar water! It makes me think that people who actually have a problem react to fasting then sugar water
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Arran
I just checked my blood work! I have had an ANA test
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Arran
It’s negative
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Arran
I’ve got a long list of blood work that was don’t over 12 months ago! I’m nit sure what 90% of them are testing for
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Arran
Done* not don’t
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Arran
Do you know how to attach a photo here?
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Fasciculation1
You can’t post pics, on these profile posts, I don’t think.
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Arran
I didn’t think so! I was just going to show to one of my emgs from over a year ago
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Arran
My shoulders are so fatigued after cooking dinner! I don’t understand how this is happening with no evidence of anything!!
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Arran
I know the evidence stacks against me, for als/mnd, which is great! But I’m slowly getting weaker and fatigued easier and loosing muscle! It’s not happening fast but it’s there
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Fasciculation1
Have you had your testosterone levels checked?
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Fasciculation1
Mine was low normal, but only about half what it should be for my age. I was 300, but should be closer to 600.
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Arran
Yeah, I’m fairly sure it was in all my paper work! I’ll check it again
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Fasciculation1
Do you have a finger pulse oximeter at home? It’s the thing that goes on the end of your finger and shows your pulse and oxygen saturation.
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Fasciculation1
I think I may have stumbled on an interesting puzzle piece this morning. There’s something called POTS or Dysautonomia. A large piece of that is when your pulse increases 30 points or more from a laying down to standing position. While wearing my pulse of finger sensor this morning, my heart rate shot up and stayed up almost instantaneously from 63 to 100ish. I tried it several times, and
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