I guess i can post on here, been reading your comments and convos. Would like to join in on this journey with all of you, im 21 M. Started twitching bodywide 6 months ago, clean clinicals but no emgs yet. My neuro (NP) is a clown and basically said i could have als without doing any actual tests so i stopped going to her. I dont seem to hve any atrophy or weakness but who knows at this point.
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Hope you are well. Been trying to stay off the site...keep the BP down . I’ve seen on posts that people have traded email without it getting deleted. I tried to send u mine and apparently it did. I had the same with thyroid nodules and it turned out to be nothing. I understand about wanting answers
Hi Fasciculation1, it sounds like we're both in the Bay Area. I have not been to Stanford but have been to UCSF and a bunch of neuros at Kaiser. Have you tried Trazodone for sleep, supposedly neuroprotective....well, in mice, at least. :-/
I’ve been reading your story, and I’m in a very similar position to you, although you have managed to explain yourself much better than me! I’d be very interested in hearing from you as I’m sure you know how isolating this situation make us feel! The doctors think we are mad and family and friends try to understand it but really have no concept of the severity of it all
Good Day,
Been reading your posts with interest. My symptoms have been very similar.Ran all similar testing as you and had 3good emgs. Still experiencing twitching and loosing muscle. Wanted to see how you are feeling/developing any answers?