ALS Support Community

That’s annoying! I’m mostly the same, I have a an appointment with my very first neurologist, he will most likely do an emg and ncs and physical all at once

That’s good news. I’m now waiting until Nov 5th at which time I see a neurosurgeon and then Nov 6th, I see the ALS Center neurologist again. The waits are agonizing.

It’s seems to be the way to go, it’s like asking a plumber to come to your house, because you think the pipes are leaking in the walls, and the plumber turning around and saying I’ll come back if you house falls down from rot, just incase it’s not leaking

I couldn’t have said it better! When is your appt with your first neurologist?

Tomorrow, I’m hoping he does an emg, it’s a funny thing to hope isn’t lol, but I need some answers I can’t take the emotional damage this is all causing anymore

I hear ya 100%. My als clinic neuro wanted to wait a year for another EMG. There’s no way. I think I have her convinced to do another six months from the last, which is about 4 mos away, but I don’t know I can wait even that long. Even if I have to private pay it, I’m thinking about doing another EMG sooner even If I have to go to another doc. They aren’t pleasant, but I’d do one monthly if I could.

Yeah I have to pay for my appointment tomorrow along with the emg

Is it expensive over there to private pay appts and EMGs?

Today’s appointment will be around $400

That’s not bad at all if it covers your EMG as well

So I had my appointment, and he has referred me to a guy who specialises in EMGs which did my second emg! And apparently he did the left hand and it was normal! And it’s since been done by a completely different doctor who found reinnervation, and I never showed them the earlier emg, so I don’t know what’s going on now! I have an emg on Thursday with the guy who first found no abnormal findings,

Ok. Sounds like a solid game plan. Sending positive thoughts your way. It’s all so crazy how the EMGs can be so different. My first two were totally clean, third showed old denervation and now fourth shoes active denervation in only one muscle.

Yeah really think this is the first real evidence of what I never wanted to find, just hope I’m wrong

If I didn’t have all the other symptoms, and it was just my hand, I would be more optimistic, it goes to show that the emgs aren’t really all that good at telling the difference between injury damage and disease damage

Agreed 100%, although I hope both of us are wrong and the doctors are smarter than we give them credit for.

If they find reinnervation tomorrow and denavation, then I think it’s a sealed deal

So I had the emg, and this guy didn’t even see the reinnnervation, which gives me even faith in emgs

Once you have reinnervation I think goes, so it’s definitely there he just didn’t pick it up, and this was by far the worst emg experience I’ve had, just when I thought I was getting used to them

I don’t think goes away*

Man. I’m sorry it wasn’t a good experience. When you say worst experience so far, are you referring to lain? Ive heard the term “single fiber” EMGs and I’m wondering if they use more sensitize equipment at say an als center, than at a standard neuro office? I know all four of my EMGs have produced varied results. I’m thinking about doing a fifth one soon.