Signe

Hi, I was reading some of your post and I was wondering if the salty taste you had has ever gone away? My mom had this symtom along with ALS symptoms (muscle weakness, couldn't walk or even turn in bed alone) and it turned out to be an adrenal gland tumor and it caused Cushing syndrome.. I'm just curious if you've had your adrenal glands checked?

You can mp me if that can be of any help. I live nearby.

Please know you are not alone, and it is more likely that you will receive good news than bad news when you go to the ALS clinic. I have an appointment with the boston clinic in november. Also, definitely check for lyme, I had a negative test but am doing another thats supposed to be more extensive and accurate. Please feel free to reach out if you ever want to chat. take care, Jeff

Hi Signe, Good evening. I am sorry you are dealing with this. I'm reaching out because I am currently exhibiting some concerning symptoms and am worried about FALS as well. Doctors and folks on this thread have been telling me I may be having a PTSD sort of reaction as well.. So good news, that does exist, particularly in those that have watch a loved one succumb to the disease. My mother died of ALS at 52. I am only 26 and have been experiencing fasciculations throughout my whole body, clumsy hands with poor dexterity, dropping things often, stiffness in my neck, and weakness in both legs. I wanted to offer you moral support as it can be lonely going through all this. I started to notice my symptoms 3 months ago and in hindsight can trace them back about 6-8 months.